Toggle Main Menu Toggle Search

Open Access padlockePrints

Research Priorities of Individuals and Caregivers With Lewy Body Dementia: A Web-based Survey

Lookup NU author(s): Professor John-Paul TaylorORCiD


Full text for this publication is not currently held within this repository. Alternative links are provided below where available.


Copyright © 2023 Wolters Kluwer Health, Inc. All rights reserved.INTRODUCTION: Lewy body dementia (LBD) is common, yet under-recognized and under-researched. To plan studies with the highest impact, engagement of the community personally affected by these conditions is essential. METHODS: A web-based survey of people living with LBD and current and former caregivers of people with LBD queried research priorities through forced ranking and exploration of burden of LBD symptoms. Specific caregiving needs in LBD and perceptions of research participation were also investigated. RESULTS: Between April 7, 2021 and July 1, 2021, 984 responses were recorded. Top research priorities included disease-modifying therapies and improved disease detection and staging. People with LBD were interested in pathophysiology and more bothered by motor symptoms; caregivers were interested in risk factors and symptomatic therapies and more bothered by neuropsychiatric symptoms. Few available LBD treatments and resources were rated as helpful, and many valuable services were never received. Previous participation in LBD research was infrequent, but interest was high. DISCUSSION: People with LBD and caregivers highlighted the need for research across all aspects of LBD, from pathophysiology and disease modification to prognosis, education, symptomatic treatments, and caregiver support. Funders should increase support for all aspects of LBD research to target the many needs identified by individuals and families living with LBD.

Publication metadata

Author(s): Holden SK, Bedenfield N, Taylor AS, Bayram E, Schwilk C, Fleisher J, Duda J, Shill H, Paulson HL, Stacy K, Wood J, Corsentino P, Sha SJ, Litvan I, Irwin DJ, Quinn JF, Goldman JG, Amodeo K, Taylor J-P, Boeve BF, Armstrong MJ

Publication type: Article

Publication status: Published

Journal: Alzheimer Disease and Associated Disorders

Year: 2023

Volume: 37

Issue: 1

Pages: 50-58

Print publication date: 01/01/2023

Online publication date: 23/02/2023

Acceptance date: 01/12/2022

ISSN (print): 0893-0341

ISSN (electronic): 1546-4156

Publisher: Lippincott Williams & Wilkins


DOI: 10.1097/WAD.0000000000000545

PubMed id: 36821177


Altmetrics provided by Altmetric