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Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care

Lookup NU author(s): Emerita Professor Katherine Bushby

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Abstract

Optimum management of Duchenne muscular dystrophy (DMD) requires a multidisciplinary approach that focuses on anticipatory and preventive measures as well as active interventions to address the primary and secondary aspects of the disorder. Implementing comprehensive management strategies can favourably alter the natural history of the disease and improve function, quality of life, and longevity. Standardised care can also facilitate planning for multicentre trials and help with the identification of areas in which care can be improved. Here, we present a comprehensive set of DMD care recommendations for management of rehabilitation, orthopaedic, respiratory, cardiovascular, gastroenterology/nutrition, and pain issues, as well as general surgical and emergency-room precautions. Together with part 1 of this Review, which focuses on diagnosis, pharmacological treatment, and psychosocial care, these recommendations allow diagnosis and management to occur in a coordinated multidisciplinary fashion.

Publication metadata

Author(s): Bushby K; Finkel R; Birnkrant DJ; Case LE; Clemens PR; Cripe L; Kaul A; Kinnett K; McDonald C; Pandya S; Poysky J; Shapiro F; Tomezsko J; Constantin C

Publication type: Article

Publication status: Published

Journal: Lancet Neurology

Year: 2010

Volume: 9

Issue: 2

Pages: 177-189

Print publication date: 01/02/2010

Date deposited: 25/02/2010

ISSN (print): 1474-4422

ISSN (electronic): 1474-4465

Publisher: Elsevier

URL: http://dx.doi.org/10.1016/S1474-4422(09)70272-8

DOI: 10.1016/S1474-4422(09)70272-8

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