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A prospective study of the presentation and management of dancing eye syndrome/opsoclonus-myoclonus syndrome in the United Kingdom

Lookup NU author(s): Dr Ki Pang


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The incidence, mode of presentation and management of Dancing Eye Syndrome/Opsoclonus-Myoclonus Syndrome (DES/OMS) was prospectively evaluated in 20 United Kingdom (UK) paediatric neurology centres by questionnaire over a 24-month period between 2003 and 2005 Nineteen children were notified, giving an incidence of 0 18 cases per million total population per year Mean age at presentation was 18 months (range 3-42 months) Fifteen families consented to participate in the study Atypical features were present in 6/15 cases including very delayed presentation of opsoclonus, dysphagia, and rapid spontaneous improvement without treatment Only 4/15 cases were associated with neuroblastoma (NB) but current practice in excluding this is diverse and a standardised approach is suggested (C) 2009 European Paediatric Neurology Society Published by Elsevier Ltd All rights reserved

Publication metadata

Author(s): Pang KK, de Sousa C, Lang B, Pike MG

Publication type: Article

Publication status: Published

Journal: European Journal of Paediatric Neurology

Year: 2010

Volume: 14

Issue: 2

Pages: 156-161

ISSN (print): 1090-3798

ISSN (electronic): 1532-2130

Publisher: Elsevier Ltd


DOI: 10.1016/j.ejpn.2009.03.002


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