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Creating a national register of childhood type 1 diabetes using routinely collected hospital data

Lookup NU author(s): Dr Susan Hodgson, Richard Feltbower

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Abstract

Hodgson S, Beale L, Parslow RC, Feltbower RG, Jarup L. Creating a national register of childhood type 1 diabetes using routinely collected hospital data. Introduction: There is no national register of childhood type 1 diabetes mellitus for England. Our aim was to assess the feasibility of using routine hospital admissions data as a surrogate for a childhood diabetes register across England, and to create a geographically referenced childhood diabetes dataset for use in epidemiologic studies and health service research. Methods: Hospital Episodes Statistics data for England from April 1992 to March 2006 referring to a type 1 diabetes diagnosis in 014 yr olds were cleaned to approximate an incident dataset. The cleaned data were validated against regional population-based register data, available for Yorkshire and the area of the former Oxford Regional Health Authority. Results: There were 32 665 unique cases of type 1 and type unknown diabetes over the study period. The hospital-derived data improved in quality over time (91% concordance with regional register data over the period 20002006 vs. 52% concordance over the period 19921999), and data quality was better for younger (09 yr) (86.5% concordance with regional register data) than older cases (1014 yr). Overall incidence was 24.99 (95% confidence interval 24.7125.26) per 100 000. Basic trends in age distribution, seasonality of onset, and incidence matched well with previously reported findings. Conclusion: We were able to create a surrogate register of childhood diabetes based on national hospital admissions data, containing approximately 2300 cases/yr, and geo-coded to a high resolution. For younger cases (09 yr) and more recent years (from 2000) these data will be a useful resource for epidemiological studies exploring the determinants of childhood diabetes.

Publication metadata

Author(s): Hodgson S, Beale L, Parslow RC, Feltbower RG, Jarup L

Publication type: Article

Publication status: Published

Journal: Pediatric Diabetes

Year: 2012

Volume: 13

Issue: 3

Pages: 235-243

Print publication date: 23/10/2011

ISSN (print): 1399-543X

ISSN (electronic): 1399-5448

Publisher: Wiley-Blackwell Publishing, Inc.

URL: http://dx.doi.org/10.1111/j.1399-5448.2011.00815.x

DOI: 10.1111/j.1399-5448.2011.00815.x

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