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European study of frequency of participation of adolescents with and without cerebral palsy

Lookup NU author(s): Dr Kathryn Parkinson, Emeritus Professor Allan ColverORCiD, Dr Heather Dickinson



This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


Children with cerebral palsy participate less in everyday activities than children in the general populations. During adolescence, rapid physical and psychological changes occur which may be more difficult for adolescents with impairments.Within the European SPARCLE project we measured frequency of participation of adolescents with cerebral palsy by administering the Questionnaire of Young People's Participation to 667 adolescents with cerebral palsy or their parents from nine European regions and to 4666 adolescents from the corresponding general populations. Domains and single items were analysed using respectively linear and logistic regression.Adolescents with cerebral palsy spent less time with friends and had less autonomy in their daily life than adolescents in the general populations. Adolescents with cerebral palsy participated much less in sport but played electronic games at least as often as adolescents in the general populations. Severity of motor and intellectual impairment had a significant impact on frequency of participation, the more severely impaired being more disadvantaged. Adolescents with an only slight impairment participated in some domains as often as adolescents in the general populations. Regional variation existed. For example adolescents with cerebral palsy in central Italy were most disadvantaged according to decisional autonomy, while adolescents with cerebral palsy in east Denmark and northern England played sports as often as their general populations. Participation is an important health outcome.Personal and environmental predictors of participation of adolescents with cerebral palsy need to be identified in order to design interventions directed to such predictors; and in order to inform the content of services. (C) 2013 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights reserved.

Publication metadata

Author(s): Michelsen SI, Flachs EM, Damsgaard MT, Parkes J, Parkinson K, Rapp M, Arnaud C, Nystrand M, Colver A, Fauconnier J, Dickinson HO, Marcelli M, Uldall P

Publication type: Article

Publication status: Published

Journal: European Journal of Paediatric Neurology

Year: 2014

Volume: 18

Issue: 3

Pages: 282-294

Print publication date: 01/05/2014

Online publication date: 25/12/2013

Acceptance date: 10/12/2013

Date deposited: 01/09/2014

ISSN (print): 1090-3798

ISSN (electronic): 1532-2130

Publisher: Elsevier Science


DOI: 10.1016/j.ejpn.2013.12.003


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Funder referenceFunder name
Folke Bernadotte Foundation (Sweden)
Fondazione Carivit, Viterbo (Italy)
German Foundation for the Disabled Child
IRESP (France)
Ludvig and Sara Elsass Foundation
MiRe - DRESS (France)
Spastics Society (Denmark)
CNSA (France)
Cooperativa Sociale "Gli Anni in Tasca" (Italy)
Goteborg University - Riksforbundet for Rorelsehindrade Barn och Ungdomar (Sweden)
INSERM (France)
Vanforefonden (Denmark)
086315 A1AWellcome Trust WT
E26-2010Medical Faculty of the University of Lubeck (Germany)
E40-2009Medical Faculty of the University of Lubeck (Germany)
GRR-58640-2/14German Ministry of Health
QLG5-CT-2002-00636European Union