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Lookup NU author(s): Dr Kathryn Parkinson, Emeritus Professor Allan ColverORCiD, Dr Heather Dickinson
This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).
Children with cerebral palsy participate less in everyday activities than children in the general populations. During adolescence, rapid physical and psychological changes occur which may be more difficult for adolescents with impairments.Within the European SPARCLE project we measured frequency of participation of adolescents with cerebral palsy by administering the Questionnaire of Young People's Participation to 667 adolescents with cerebral palsy or their parents from nine European regions and to 4666 adolescents from the corresponding general populations. Domains and single items were analysed using respectively linear and logistic regression.Adolescents with cerebral palsy spent less time with friends and had less autonomy in their daily life than adolescents in the general populations. Adolescents with cerebral palsy participated much less in sport but played electronic games at least as often as adolescents in the general populations. Severity of motor and intellectual impairment had a significant impact on frequency of participation, the more severely impaired being more disadvantaged. Adolescents with an only slight impairment participated in some domains as often as adolescents in the general populations. Regional variation existed. For example adolescents with cerebral palsy in central Italy were most disadvantaged according to decisional autonomy, while adolescents with cerebral palsy in east Denmark and northern England played sports as often as their general populations. Participation is an important health outcome.Personal and environmental predictors of participation of adolescents with cerebral palsy need to be identified in order to design interventions directed to such predictors; and in order to inform the content of services. (C) 2013 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights reserved.
Author(s): Michelsen SI, Flachs EM, Damsgaard MT, Parkes J, Parkinson K, Rapp M, Arnaud C, Nystrand M, Colver A, Fauconnier J, Dickinson HO, Marcelli M, Uldall P
Publication type: Article
Publication status: Published
Journal: European Journal of Paediatric Neurology
Year: 2014
Volume: 18
Issue: 3
Pages: 282-294
Print publication date: 01/05/2014
Online publication date: 25/12/2013
Acceptance date: 10/12/2013
Date deposited: 01/09/2014
ISSN (print): 1090-3798
ISSN (electronic): 1532-2130
Publisher: Elsevier Science
URL: http://dx.doi.org/10.1016/j.ejpn.2013.12.003
DOI: 10.1016/j.ejpn.2013.12.003
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