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Care at the End of Life: Design Priorities for People with Dementia

Lookup NU author(s): Professor Dame Louise Robinson


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This paper discusses pre-design stage research concerned with supporting excellence in end-of-life care (EoLC) for people with dementia (PwD). The discontinuation and replacement of previous with new EoLC guidance provides the opportunity for improving care package materials (CPMs) to support EoLC. Current CPMs tend largely to address governance, recording of treatment and consent for audit purposes. This research identified the need for CPMs to better reflect the complexities, coordination and communication needs between the patient (and those important to them) carers and physicians, and to anticipate discussions, scenarios and consequences of decision-making between all parties involved along a patient's uncertain trajectory at EoL: dementia adds another level of challenge. Findings from evaluating existing CPMs and surveying of new technological developments are discussed in this context.

Publication metadata

Author(s): Macdonald AS, Robinson L

Publication type: Conference Proceedings (inc. Abstract)

Publication status: Published

Conference Name: Third KES International Conference on Innovation in Medicine and Healthcare 2015 (InMed-15)

Year of Conference: 2016

Pages: 517-526

Print publication date: 12/08/2015

Acceptance date: 01/01/1900

ISSN: 2190-3018

Publisher: Springer International Publishing


DOI: 10.1007/978-3-319-23024-5_47

Library holdings: Search Newcastle University Library for this item

Series Title: Smart Innovation, Systems and Technologies

ISBN: 9783319230238