Toggle Main Menu Toggle Search

Open Access padlockePrints

Palliative care in people with idiopathic Parkinson's disease who die in hospital

Lookup NU author(s): Professor Richard Walker, Dr Deepta Churm, Dr Felicity Dewhurst, Jessica Hill, Dr Brian Wood


Full text for this publication is not currently held within this repository. Alternative links are provided below where available.


Background: The UK National Institute for Health and Clinical Excellence guidelines state that palliative care options for people with Parkinson's disease (PD) should be discussed. Aims: To investigate whether palliative care guidelines are adhered to for people with PD who die in hospital. Setting/participants: The medical notes of all people with a diagnosis of idiopathic PD who were living in two adjacent areas of northeast England and who died over a 3-year period were examined. Demographic data and specific information regarding events around the time of death were recorded. Results: For the 236 patients identified, the average age at death was 82.8 years. Of these patients, 110 (46.6%) died in hospital, 56 (23.7%) at home, 59 (25.0%) in a care home and for 11 patients (4.7%) the place of death was not recorded. For those who died in hospital, only three patients, and seven relatives of patients, had had a recorded discussion with a clinician regarding their preferred place of death and only 15 (13.6%) were referred to a specialist palliative care team. Forty-six patients (41.8%) were placed on the Liverpool Care Pathway. Conclusions: For those dying in hospital, there are few previously documented end-of-life care discussions with patients or their relatives. The use of end-of-life pathways and access to specialist palliative care is variable. Following the Neuberger report, the Liverpool Care Pathway is to be replaced with individual end-of-life care plans. It is important to engage patients, and their relatives, in decision making regarding preferences at the end of life.

Publication metadata

Author(s): Walker RW, Churm D, Dewhurst F, Samuel M, Ramsell A, Lawrie C, Hill J, Threapleton CJD, Wood B, Gray WK

Publication type: Article

Publication status: Published

Journal: BMJ Supportive and Palliative Care

Year: 2014

Volume: 4

Issue: 1

Pages: 64-67

Print publication date: 01/03/2014

Online publication date: 19/11/2013

Acceptance date: 01/10/2013

ISSN (print): 2045-435X

ISSN (electronic): 2045-4368

Publisher: BMJ Publishing Group


DOI: 10.1136/bmjspcare-2012-000412

PubMed id: 24644773


Altmetrics provided by Altmetric