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Current characteristics, challenges and coping strategies of young people with cystic fibrosis as they transition to adulthood

Lookup NU author(s): Kristina Askew, Jade Bamford, Dr Simon Doe, Dr Stephen Bourke


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© Royal College of Physicians 2017. All rights reserved. This study provides detailed data on the current characteristics, perceptions and outcomes of 45 young people with cystic fibrosis (CF) as they transition into adulthood. Although many had severe disease, they generally coped well, found attendance at a transition clinic helpful and welcomed the increased independence of an adult healthcare environment. Levels of psychological distress were low with only 15.6% having anxiety and 6.7% depression. The main psychological coping strategy used was optimistic acceptance. Overall, most remained stable after transfer but 33% had some decline in lung function and 9% in nutritional status, requiring intensification of treatment. They had high levels of satisfaction with their relationships and life situations and 76% were in employment or education. These results are encouraging and as life expectancy improves, young adults with CF are coping well with transition into adulthood.

Publication metadata

Author(s): Askew K, Bamford J, Hudson N, Moratelli J, Miller R, Anderson A, Doe S, Bourke SJ

Publication type: Article

Publication status: Published

Journal: Clinical Medicine

Year: 2017

Volume: 17

Issue: 2

Pages: 121-125

Print publication date: 01/04/2017

Acceptance date: 02/04/2016

ISSN (print): 1470-2118

ISSN (electronic): 1473-4893

Publisher: Royal College of Physicians


DOI: 10.7861/clinmedicine.17-2-121


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