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Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Lookup NU author(s): Professor Madeleine Murtagh


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© Copyright 2017, Mary Ann Liebert, Inc. 2017. Discussions regarding responsible genomic data sharing often center around ethical and legal issues such as the consent, privacy, and confidentiality of individuals, families, and communities. To ensure the ethical grounds of genomic data sharing, oversight by both research ethics and Data Access Committees (DACs) across the research lifecycle is warranted. In this article, we review these oversight practices and argue that they reveal a compelling need to clarify the scope of ethical considerations by oversight bodies and to delineate core elements such as "objectionable" data uses. Ethical oversight of genomic data sharing would be considerably improved if the relevant ethical considerations by research ethics and DACs were coordinated. We therefore suggest several mechanisms to achieve greater clarification of ethical considerations by these committees, as well as greater communication and coordination between both to ensure robust and sustained ethical oversight of genomic data sharing.

Publication metadata

Author(s): Shabani M, Dove ES, Murtagh M, Knoppers BM, Borry P

Publication type: Review

Publication status: Published

Journal: Biopreservation and Biobanking

Year: 2017

Volume: 15

Issue: 5

Pages: 469-474

Online publication date: 24/08/2017

Acceptance date: 02/04/2016

ISSN (print): 1947-5535

ISSN (electronic): 1947-5543

Publisher: Mary Ann Liebert Inc.


DOI: 10.1089/bio.2017.0045