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Identifiability and privacy in pluripotent stem cell research

Lookup NU author(s): Professor Paul BurtonORCiD


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Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders. © 2014 Elsevier Inc.

Publication metadata

Author(s): Isasi R, Andrews PW, Baltz JM, Bredenoord AL, Burton P, Chiu I-M, Hull SC, Jung J-W, Kurtz A, Lomax G, Ludwig T, McDonald M, Morris C, Ng HH, Rooke H, Sharma A, Stacey GN, Williams C, Zeng F, Knoppers BM

Publication type: Review

Publication status: Published

Journal: Cell Stem Cell

Year: 2014

Volume: 14

Issue: 4

Pages: 427-430

Online publication date: 03/04/2014

Acceptance date: 01/01/1900

ISSN (print): 1934-5909

ISSN (electronic): 1875-9777

Publisher: Cell Press


DOI: 10.1016/j.stem.2014.03.014

PubMed id: 24702994