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Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability

Lookup NU author(s): Dr Sarah Skyrme, Dr Simon Woods

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This is the authors' accepted manuscript of an article that has been published in its final definitive form by Sage Publications, 2018.

For re-use rights please refer to the publisher's terms and conditions.


Abstract

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.


Publication metadata

Author(s): Skyrme SL, Woods S

Publication type: Article

Publication status: Published

Journal: Childhood

Year: 2018

Volume: 25

Issue: 3

Pages: 355-368

Print publication date: 01/08/2018

Online publication date: 24/04/2018

Acceptance date: 24/03/2018

Date deposited: 02/05/2018

ISSN (print): 0907-5682

ISSN (electronic): 1461-7013

Publisher: Sage Publications

URL: https://doi.org/10.1177/0907568218769365

DOI: 10.1177/0907568218769365


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