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Exploring lived experiences is key to inform the development of self-management intervention for Chronic Obstructive Pulmonary Disease (COPD) in primary Care.

Lookup NU author(s): Dr Dapo Ogunbayo, Dr Siân Russell, Professor Eileen KanerORCiD


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In evidence-based medicine, many complex healthcare interventions are informed by experimental and observational quantitative research methods. Hence drawing on the richness of human experiences often seems secondary to a focus on objectivity and generalisability. Qualitative inquiry purposefully seeks to understand subjective meanings and beliefs held by key individuals within specific contexts. As health policy advocates a shift to shared decision-making with ‘expert’ patients, it seems essential for their perspectives to be placed at the centre of care. Our research utilised predominately qualitative methods to explore experiences and perspectives practitioners and patients living with COPD to inform the development of a self-management intervention and how it might be facilitated in a primary care setting. Numerous systematic reviews and meta-analyses have demonstrated the effectiveness of self-management interventions, but many fail to achieve these benefits in real-life practice. We utilised pragmatic qualitative approaches to develop a prototype COPD self-management intervention via the following process; identifying the evidence base using a qualitative meta-synthesis of the literature; developing a theory by exploring barriers and facilitators with key informants via interviewing and participatory/co-design workshops; and modelling the process and outcomes via a qualitative feasibility evaluation of the prototype intervention. As well as outlining our findings, this presentation will reflect on how reflexivity and rigour were built into the process, the practical and ethical challenges encountered and approaches taken to improve the internal and external validity, and credibility of the data.

Publication metadata

Author(s): Ogunbayo OJ, Russell S, Kaner E

Publication type: Conference Proceedings (inc. Abstract)

Publication status: Published

Conference Name: The 16th Qualitative Methods Conference hosted by the International Institute for Qualitative Methodology, University of Alberta

Year of Conference: 2018

Acceptance date: 18/12/2017