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Barriers to active self-management following treatment for head and neck cancer: Survivors' perspectives

Lookup NU author(s): Professor Linda Sharp


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© 2018 John Wiley & Sons, Ltd. Objective: Active self-management practices may help head and neck cancer (HNC) survivors to deal with challenges to their physical, functional, social, and psychological well-being presented by HNC and its treatment. This study investigates the factors perceived by HNC survivors to act as barriers to their active self-management following primary treatment. Methods: In this qualitative study, 27 HNC survivors identified through 4 designated cancer centres in Ireland participated in face-to-face semistructured interviews. Interviews were audio-recorded, transcribed, and analysed using thematic analysis. Results: Four themes (and associated subthemes) describing barriers to survivors' active self-management were identified: emotional barriers (eg, fear of recurrence), symptom-related barriers (eg, loss of taste), structural barriers (eg, access to appropriate health services), and self-evaluative barriers (eg, interpersonal self-evaluative concerns). Conclusions: This is the first study to describe HNC survivors' views about barriers to their active self-management after treatment. The findings have important implications for self-management research and intervention development concerning HNC survivorship.

Publication metadata

Author(s): Dunne S, Coffey L, Sharp L, Timmons A, Desmond D, Gooberman-Hill R, O'Sullivan E, Keogh I, Timon C, Gallagher P

Publication type: Article

Publication status: Published

Journal: Psycho-Oncology

Year: 2018

Volume: 27

Issue: 10

Pages: 2382-2388

Print publication date: 01/10/2018

Online publication date: 29/06/2018

Acceptance date: 22/06/2018

ISSN (print): 1057-9249

ISSN (electronic): 1099-1611

Publisher: John Wiley and Sons Ltd


DOI: 10.1002/pon.4835


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