Toggle Main Menu Toggle Search

Open Access padlockePrints

A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia

Lookup NU author(s): Professor Dame Louise Robinson



This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


© The Author(s) 2019. Background: A challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good or effective care into quality indicators that inform service development and evaluation. Aim: To identify and critically evaluate quality indicators for end-of-life care in dementia. Results: We found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines. Conclusions: We systematically derived and assessed a set of quality indicators using a robust framework that provides clear definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex interventions in end-of-life care in dementia.

Publication metadata

Author(s): Amador S, Sampson EL, Goodman C, Robinson L

Publication type: Review

Publication status: Published

Journal: Palliative Medicine

Year: 2019

Volume: 33

Issue: 4

Pages: 415-429

Print publication date: 01/04/2019

Online publication date: 11/03/2019

Acceptance date: 02/04/2016

ISSN (print): 0269-2163

ISSN (electronic): 1477-030X

Publisher: SAGE Publications Ltd


DOI: 10.1177/0269216319834227