Toggle Main Menu Toggle Search

Open Access padlockePrints

Use of coping strategies in MND/ALS: Association with demographic and disease‐related characteristics

Lookup NU author(s): Dr Timothy Williams


Full text for this publication is not currently held within this repository. Alternative links are provided below where available.


© 2019 John Wiley & Sons A/S. Published by John Wiley & Sons LtdObjective: Understanding the use of coping strategies and which factors are associated with strategy utilization might help clinical staff anticipate which coping strategies individuals are more likely to utilize. In this study, we assess coping strategy use in the motor neuron disease (MND, also known as amyotrophic lateral sclerosis [ALS]) population and examine associations of demographic and disease variables with individual coping strategies. Participants and Methods: A total of 233 participants with MND/ALS were recruited into the ongoing Trajectories of Outcomes in Neurological Conditions study from MND clinics across the United Kingdom. Participants completed a questionnaire pack collecting data on demographics and a range of patient-reported measures including the Coping Orientations to Problems Experienced scale. Associations between demographic and clinical characteristics and coping strategies were examined by simple and multiple ordinal logistic regression. Results: The most commonly used strategy was Acceptance, followed by Active Coping, Planning and Positive Re-interpretation and Growth. The least used strategies were Substance Use, Turning to Religion and Denial. Ten out of the fifteen strategies showed statistically significant associations with demographic and clinical characteristics. Most markedly, females were found to utilize many strategies more than males, namely Restraint, Seeking Instrumental Social Support, Seeking Emotional Social Support, Focus on and Venting of Emotions, Behavioural Disengagement and Mental Disengagement. Conclusion: Clinical staff should be aware that coping strategy use is associated with several demographic and disease characteristics. Targeted advice on coping may improve coping capacity and facilitate psychosocial adjustment.

Publication metadata

Author(s): Schluter DK, Holland DP, Mills RJ, McDermott CJ, Williams TL, Young CA

Publication type: Article

Publication status: Published

Journal: Acta Neurologica Scandinavica

Year: 2019

Volume: 140

Issue: 2

Pages: 131-139

Print publication date: 10/07/2019

Online publication date: 06/05/2019

Acceptance date: 21/04/2019

ISSN (print): 0001-6314

ISSN (electronic): 1600-0404

Publisher: Blackwell Publishing Ltd


DOI: 10.1111/ane.13113

PubMed id: 31058309


Altmetrics provided by Altmetric