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Lookup NU author(s): Professor Roderick Skinner, Dr Morven BrownORCiD
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© 2019, Springer Science+Business Media, LLC, part of Springer Nature. Purpose: To facilitate the implementation of long-term follow-up (LTFU) care and improve equality of care for childhood, adolescent, and young adult (CAYA) cancer survivors, the PanCareSurFup Guidelines Working Group developed evidence-based recommendations for the organization of LTFU. Methods: We established an international multidisciplinary guideline panel. A systematic review of the literature published from 1999 to 2017 was completed to answer six clinical questions. The guideline panel reviewed the identified studies, developed evidence summaries, appraised the quality of the body of evidence, and formulated recommendations based on the evidence, expert opinions, and the need to maintain flexibility of application across different healthcare systems. Results: We provide strong recommendations based on low level evidence and expert opinions, regarding organization of LTFU care, personnel involved in LTFU care, components of LTFU care and start of LTFU care. We recommend that risk-adapted LTFU care provided under the guidance of a cancer survivorship expert service or cancer centre should be available and accessible for all CAYA cancer survivors throughout their lifespan. Conclusion: Despite the weak levels of evidence, successful and effective implementation of these recommendations should improve LTFU, thereby leading to better access to appropriate healthcare services and an improvement in health outcomes for CAYA cancer survivors. Implications for Cancer Survivors: To improve health outcomes and quality of survivorship of current and future survivors, continued age-adapted education of survivors about the cancer, its treatment, risk of late effects, importance of health behaviours, and necessity of LTFU is important along the cancer and survivorship trajectory.
Author(s): Michel G, Mulder RL, van der Pal HJH, Skinner R, Bardi E, Brown MC, Vetsch J, Frey E, Windsor R, Kremer LCM, Levitt G
Publication type: Review
Publication status: Published
Journal: Journal of Cancer Survivorship
Year: 2019
Volume: 13
Pages: 759-772
Print publication date: 01/10/2019
Online publication date: 08/08/2019
Acceptance date: 22/07/2019
ISSN (print): 1932-2259
ISSN (electronic): 1932-2267
Publisher: Springer New York LLC
URL: https://doi.org/10.1007/s11764-019-00795-5
DOI: 10.1007/s11764-019-00795-5
