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Lookup NU author(s): Dr Yu-Tzu WuORCiD, Professor Fiona MatthewsORCiD
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND).
© 2019 The Author. Introduction: We examined 3-month service use and costs of care for people with mild-to-moderate dementia in Great Britain. Methods: We analyzed Improving the experience of Dementia and Enhancing Active Life cohort study baseline data on paid care, out-of-pocket expenditure, and unpaid care from participants with dementia (N = 1547) and their carers (N = 1283). In regression analyses, we estimated per-group mean costs of diagnostic and sociodemographic subgroups. Results: Use of services apart from primary and outpatient hospital care was low. Unpaid care accounted for three-quarters of total costs (mean, £4008 [standard error, £130] per participant). Most participants (87%) received unpaid care equating to 36 hours weekly. Estimated costs for people with Parkinson's dementia were £8609, £4359 for participants with mixed dementia, and £3484 for those with Alzheimer's disease. Total costs were lower for participants with dementia living alone than living with others (£2484 vs. £4360); costs were lower for female than for male participants (£3607 vs. £4272). Discussion: Costs varied by dementia subtype, carer status, and living arrangement. Policy makers should recognize the high costs of unpaid care for people with dementia, who do not always get the support that they need or would like to receive.
Author(s): Henderson C, Knapp M, Nelis SM, Quinn C, Martyr A, Wu Y-T, Jones IR, Victor CR, Pickett JA, Hindle JV, Jones RW, Kopelman MD, Matthews FE, Morris RG, Rusted JM, Thom JM, Clare L
Publication type: Article
Publication status: Published
Journal: Alzheimer's and Dementia: Translational Research and Clinical Interventions
Year: 2019
Volume: 5
Pages: 685-696
Online publication date: 31/10/2019
Acceptance date: 17/09/2019
Date deposited: 17/09/2019
ISSN (print): 1552-5260
ISSN (electronic): 1552-5279
Publisher: Elsevier
URL: https://doi.org/10.1016/j.trci.2019.09.012
DOI: 10.1016/j.trci.2019.09.012
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