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Living Alone with Mild-To-Moderate Dementia: Findings from the IDEAL Cohort

Lookup NU author(s): Dr Laura Gamble, Professor Fiona MatthewsORCiD



This is the authors' accepted manuscript of an article that has been published in its final definitive form by IOS Press BV, 2020.

For re-use rights please refer to the publisher's terms and conditions.


© 2020 - IOS Press and the authors. All rights reserved.Background: A significant proportion of people with dementia live alone, but little is known about their specific needs. Objective: To understand the profile of people living alone with mild-to-moderate dementia in the UK and identify any systematic differences associated with living situation. Methods: We analyzed cross-sectional data from 1,541 people with mild-to-moderate dementia and 1,277 caregivers participating in the IDEAL cohort at the first wave of assessment. Results: There were 1,256 (81.5%) people with dementia living with others and 285 (18.5%) living alone, of whom 51 (3% of whole sample) reported little or no informal support. There were relatively few differences associated with living situation and odds ratios were generally small. People living alone were older on average, and more likely to be female, than those living with others. Those living alone were more likely to have higher cognitive ability and self-reported functional ability, and more social contact with those from other households. They were also lonelier, expressed less satisfaction with life, and used home care services and equipment more. There were no differences in symptoms, mood, quality of life, or well-being. Conclusion: The findings support the view that it is possible to 'live well' with mild-to-moderate dementia while living alone, given appropriate support, including home care and equipment. Nevertheless, it is important to consider how those living alone may be supported to have a more satisfactory experience, and how health and social care services can best respond to their needs.

Publication metadata

Author(s): Clare L, Martyr A, Henderson C, Gamble L, Matthews FE, Quinn C, Nelis SM, Rusted J, Thom J, Knapp M, Hart N, Victor C

Publication type: Article

Publication status: Published

Journal: Journal of Alzheimer's Disease

Year: 2020

Volume: 78

Issue: 3

Pages: 1207-1216

Online publication date: 24/11/2020

Acceptance date: 17/09/2020

Date deposited: 03/01/2021

ISSN (print): 1387-2877

ISSN (electronic): 1875-8908

Publisher: IOS Press BV


DOI: 10.3233/JAD-200638

PubMed id: 33104029


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