Browse by author
Lookup NU author(s): Stephanie Van Eeden,
Dr David Sainsbury
Full text for this publication is not currently held within this repository. Alternative links are provided below where available.
© 2021, American Cleft Palate-Craniofacial Association.Background: There may be many reasons for delays to primary cleft surgery. Our aim was to investigate the age of children undergoing primary cleft lip or primary cleft palate repair in 5 cleft centers within the United Kingdom. Identify the reasons for delayed primary cleft lip repair (beyond 6 months) and delayed primary palate repair (beyond 13 months). Identify children who had a cleft lip and/or palate (CL±P) that was intentionally unrepaired and the reasons for this. Methods: A retrospective, multicenter review of patients born with a CL±P between December 1, 2012, and December 31, 2016. Three regional cleft centers, comprising of 5 cleft administrative units in the United Kingdom participated. Results: In all, 1826 patients with CL±P were identified. Of them, 120 patients had delayed lip repair, outside the expected standard of 183 days. And, 178 patients in total had delayed palate repair, outside the expected standard of 396 days. Twenty (1%) patients had an unrepaired cleft palate. Conclusions: This large retrospective review highlights variations between centers regarding the timing of lip and palate surgery and details the reasons stated for delayed primary surgery. A small number of patients with an unrepaired cleft palate were identified. All had complex medical problems or comorbidities listed as a reason for the decision not to operate and 50% had a syndromic diagnosis. The number of patients receiving delayed surgery due to comorbidities, being underweight or prematurity, highlights the importance of the cleft specialist nurse and pediatrician within the cleft multidisciplinary team.
Author(s): Butterworth S, Rivers C, Fullarton M, Murphy C, Beale V, Neil-Dwyer J, Van Eeden S, Van Eeden S, Hodgkinson PD, Smyth A, Sainsbury DC
Publication type: Article
Publication status: Published
Journal: Cleft Palate-Craniofacial Journal
Pages: epub ahead of print
Online publication date: 10/06/2021
Acceptance date: 02/04/2018
ISSN (print): 1055-6656
ISSN (electronic): 1545-1569
Publisher: Sage Publications Ltd
Altmetrics provided by Altmetric