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WELLBECARE: Taking Care of Caregiver Well-being

Lookup NU author(s): Dr Josephine Go JefferiesORCiD


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The COVID-19 pandemic highlights the significant contributions that informal caregivers make globally. Serving as the backbone of formal care systems, caregiver needs are often overlooked. Recognising caregiving as rewarding as well as physically, emotionally, and materially demanding, research into supporting their well-being is underdeveloped. An integrative review of the caregiver and well-being literatures reveals a highly fragmented and cursory landscape. Building on a development perspective of holistic (material, relational and social) well-being that accounts for both objective and subjective dimensions, we develop the WELLBECARE framework to characterise caregiver well-being. Our focus on the relational is highly salient to the caregiver-care receiver dyad, and provides new possibilities for understanding caregivers’ well-being in contexts of shifting temporal, spatial and power dynamics in a human-centred care ecology. Furthermore, the WELLBECARE framework provides a new lens for research and policy on caregivers’ well-being that addresses the limitations of previous well-being models.

Publication metadata

Author(s): Kelleher C, Go Jefferies J, Peñaloza L, Luca N, Ozanne L, Downey H, Jenhaug L, Hibbert S

Publication type: Conference Proceedings (inc. Abstract)

Publication status: Published

Conference Name: ANZMAC 2021

Year of Conference: 2021

Acceptance date: 20/08/2021