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Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries

Lookup NU author(s): Professor Richard Walker, Dr Catherine Dotchin, Dr Stella Paddick

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This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


Abstract

© The Author(s) 2021.Background: Knowledge of and attitudes towards dementia vary across countries, and for caregivers in low- and middle-income countries (LMICs), access to information can be challenging. There is an urgent need for brief, easily accessible and culturally appropriate educational courses for caregivers of persons with dementia, providing much needed information whilst addressing important psychological concepts such as stigma. Methods: An international and multidisciplinary team developed Dementia Awareness for Caregivers (DAC) courses in four stages: (1) scoping review and module agreement, (2) development of an International template (DAC-International) containing a standardised process for adding information, (3) development of local DACs using a standardised format and (4) acceptability of courses in Brazil, India and Tanzania. Findings: The DAC-International was developed, comprising three modules: ‘What is dementia?’; ‘Positive engagement’ and ‘Caring for someone with dementia’. Three local versions were developed from this (DAC-Brazil, DAC-India and DAC-Tanzania), where additions of country-specific information included prevalent stereotypes and the addition of culturally relevant case studies. An initial field test was conducted in each country (n = 85), which indicated acceptability to participants. Conclusions: The methods used here resulted in culturally valid and acceptable educational courses for carers of people with dementia. Future work will consist of large-scale, formal evaluations and the development of additional local courses.


Publication metadata

Author(s): Stoner CR, Lakshminarayanan M, Mograbi DC, Vaitheswaran S, Bertrand E, Schimidt Brum P, Durgante H, Ferri CP, Mkenda S, Walker R, Dotchin C, Paddick S-M, Chandra M, Krishna M, Du B, Shaji KS, Fisher E, Spector A

Publication type: Article

Publication status: Published

Journal: Dementia

Year: 2021

Pages: epub ahead of print

Online publication date: 09/12/2021

Acceptance date: 02/04/2020

Date deposited: 14/01/2022

ISSN (print): 1471-3012

ISSN (electronic): 1741-2684

Publisher: SAGE Publications Ltd

URL: https://doi.org/10.1177/14713012211055316

DOI: 10.1177/14713012211055316


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