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Enhancing public involvement and community engagement in research across the North East and North Cumbria; Scoping existing good practice and proposing next steps.

Lookup NU author(s): Dr Angela Wearn, Simon Douglas, Sara Long

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This is the final published version of a report that has been published in its final definitive form by National Institute for Health and Care Research, 2022.

For re-use rights please refer to the publisher's terms and conditions.


Abstract

Public Involvement and Community Engagement (PICE) in research can benefit individuals, communities and organisations and as such, is widely promoted across National Institute for Health Research (NIHR) infrastructure. In the production of this report, we have engaged widely across the North East and North Cumbria (NENC), with NIHR, universities and the voluntary sector to discover what is happening in the region, to see what lessons we can learn and to develop ideas for further progress in the future.Building capacity for high quality involvement and engagement activity is important to ensure research opportunities and outcomes are accessible to, and representative of, those who have been traditionally underserved by research activity. NENC has high disease burden and high levels of health inequality. Increasing and enhancing existing research involvement and engagement work in this region is therefore important to address these challenges and identify areas of unmet need.There is much excellent engagement and involvement of communities and public and patients in research across the NENC and many existing initiatives which aim to further this remit. In line with this, the Local Clinical Research Network’s Targeting Health Needs strategic theme aims to enhance the links between local communities and research, improving access and opportunities for research; particularly within underserved, marginalised populations, groups and geographies.The present report was developed to support these aims by 1) showcasing examples of existing good practice within the region which have been effective in increasing PICE in research and 2) outlining ‘next steps’ and future targeted projects to build upon current work. This report therefore strengthens efforts to increase diverse involvement and engagement in health and social care research and provides a clear route for future investment of both time and resources


Publication metadata

Author(s): Wearn A, Douglas S, Long SJ

Publication type: Report

Publication status: Published

Series Title:

Year: 2022

Online publication date: 01/07/2022

Acceptance date: 01/02/2023

Institution: National Institute for Health and Care Research

URL: https://local.nihr.ac.uk/documents/enhancing-public-involvement-and-community-engagement-in-research-across-the-north-east-and-north-cumbria-scoping-existing-good-practice-and-proposing-next-steps/30916

ePrints DOI: 10.57711/ekp0-zw05


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