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Improving primary care based post-diagnostic support for people living with dementia and carers: Developing a complex intervention using the Theory of Change

Lookup NU author(s): Claire BamfordORCiD, Dr Alison WheatleyORCiD, Dr Laura BooiORCiD, Professor Dame Louise Robinson



This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


© 2023 Bamford et al.Background The need to improve support following a diagnosis of dementia is widely recognised, but it is unclear how this can best be achieved within UK health and social care systems. A taskshared and task-shifted approach has been recommended, but there is limited guidance on how to achieve this in practice. As part of a programme of research, we developed an intervention to enhance the role of primary care in post-diagnostic care and support for people living with dementia and carers. Methods We used the Theory of Change to develop a complex intervention informed by initial literature reviews and qualitative work. The intervention was developed through an iterative series of workshops, meetings and task groups with a range of stakeholders, including the multidisciplinary project team, people living with dementia and carers, service managers, frontline practitioners, and commissioners. Results 142 participants contributed to intervention development through face-to-face or virtual meetings. The intervention comprises three complementary strands of work focusing on: developing systems, delivering tailored care and support, and building capacity and capability. Clinical dementia leads, based in primary care networks, will facilitate the intervention providing tailored expertise and support.

Publication metadata

Author(s): Bamford C, Wilcock J, Brunskill G, Wheatley A, Dening KH, Manthorpe J, Allan L, Banerjee S, Booi L, Griffiths S, Rait G, Walters K, Robinson L

Publication type: Article

Publication status: Published

Journal: PLoS ONE

Year: 2023

Volume: 18

Issue: 5

Print publication date: 01/05/2023

Online publication date: 03/05/2023

Acceptance date: 17/03/2023

Date deposited: 30/05/2023

ISSN (electronic): 1932-6203

Publisher: Public Library of Science


DOI: 10.1371/journal.pone.0283818

PubMed id: 37134099


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Funder referenceFunder name
331Alzheimer`s Society
NF-SI-0616-10054National Institute for Health Research (NIHR)
NHS North of England Commissioning Support
National Institute for Health and Care Research Applied Research Collaboration South West Peninsula
Research Capability Funding