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Lookup NU author(s): Claire BamfordORCiD, Dr Alison WheatleyORCiD, Dr Laura BooiORCiD, Professor Dame Louise Robinson
This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).
© 2023 Bamford et al.Background The need to improve support following a diagnosis of dementia is widely recognised, but it is unclear how this can best be achieved within UK health and social care systems. A taskshared and task-shifted approach has been recommended, but there is limited guidance on how to achieve this in practice. As part of a programme of research, we developed an intervention to enhance the role of primary care in post-diagnostic care and support for people living with dementia and carers. Methods We used the Theory of Change to develop a complex intervention informed by initial literature reviews and qualitative work. The intervention was developed through an iterative series of workshops, meetings and task groups with a range of stakeholders, including the multidisciplinary project team, people living with dementia and carers, service managers, frontline practitioners, and commissioners. Results 142 participants contributed to intervention development through face-to-face or virtual meetings. The intervention comprises three complementary strands of work focusing on: developing systems, delivering tailored care and support, and building capacity and capability. Clinical dementia leads, based in primary care networks, will facilitate the intervention providing tailored expertise and support.
Author(s): Bamford C, Wilcock J, Brunskill G, Wheatley A, Dening KH, Manthorpe J, Allan L, Banerjee S, Booi L, Griffiths S, Rait G, Walters K, Robinson L
Publication type: Article
Publication status: Published
Journal: PLoS ONE
Year: 2023
Volume: 18
Issue: 5
Print publication date: 01/05/2023
Online publication date: 03/05/2023
Acceptance date: 17/03/2023
Date deposited: 30/05/2023
ISSN (electronic): 1932-6203
Publisher: Public Library of Science
URL: https://doi.org/10.1371/journal.pone.0283818
DOI: 10.1371/journal.pone.0283818
PubMed id: 37134099
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