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The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation

Lookup NU author(s): Professor Fai NgORCiD

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Abstract

© 2024. Sjögren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.

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Author(s): Gordon RA, Nguyen Y, Foulquier N, Beydon M, Gheita TA, Hajji R, Sahbudin I, Hoi A, Ng W-F, Mendonca JA, Wallace DJ, Shea B, Bruyn GA, Goodman SM, Fisher BA, Baldini C, Torralba KD, Bootsma H, Akpek EK, Karakus S, Baer AN, Chakravarty SD, Terslev L, D'Agostino M-A, Mariette X, DiRenzo D, Rasmussen A, Papas A, Montoya C, Arends S, Yusof MYM, Pintilie I, Warner BM, Hammitt KM, Strand V, Bouillot C, Tugwell P, Inanc N, Andreu JL, Wahren-Herlenius M, Devauchelle-Pensec V, Shiboski CH, Benyoussef A, Masli S, Lee AYS, Cornec D, Bowman S, Rischmueller M, McCoy SS, Seror R

Publication type: Article

Publication status: Published

Journal: Seminars in Arthritis and Rheumatism

Year: 2024

Volume: 65

Print publication date: 01/04/2024

Online publication date: 23/01/2024

Acceptance date: 02/04/2018

ISSN (print): 0049-0172

ISSN (electronic): 1532-866X

Publisher: Elsevier Inc.

URL: https://doi.org/10.1016/j.semarthrit.2024.152378

DOI: 10.1016/j.semarthrit.2024.152378

PubMed id: 38310657

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