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What is known about anxiety, claustrophobia and its impact on decision-making about important occupations and equipment for people with motor neurone disease? a scoping review protocol

Lookup NU author(s): Nicole O'ConnorORCiD, Jabez Barnabas, Sheila WallaceORCiD, Sonia Garcia Gonzalez-MoralORCiD, Dr Helen Close, Dr Fiona Pearson



This is the final published version of an online publication published in its final definitive form in 2024. For re-use rights please refer to the publishers terms and conditions.


Introduction: Multi-stakeholder discussions indicate that an improved understanding of motor neurone disease (MND), anxiety and claustrophobic symptoms will enable occupational therapists to intervene and better support people on their disease journey. Objective: The objective of this scoping review is to identify the breadth of existing evidence relating to anxiety, claustrophobia, and decision-making about important occupations and assistive device use for people with MND. Inclusion criteria: People with MND (or analogous conditions, COPD and neurodegenerative conditions, if limited relevant information is available for people with MND) who experience anxiety and, or, claustrophobic symptoms and their decision-making around occupations and assistive devices. Methods: An information specialist and researcher will search Embase, MEDLINE, APA PsycINFO, CINAHL with no restrictions on dates and language, the reference lists of relevant articles, relevant websites and publicly available data from patient forums. Title and abstract then full-text screening will be completed independently in duplicate by two reviewers. Following an initial pilot of 10 articles, data extraction will be undertaken by one reviewer and checked by a second. Descriptive content analysis with open abductive coding will be used to analyse the data. Reporting will adhere to the PRISMA-ScR recommendations.

Publication metadata

Author(s): O'Connor N, Bushby L, Barnabez J, Wallace S, Garcia-Gonzalez-Moral S, Close H, Pearson F

Publication type: Online Publication

Publication status: Published

Series Title:

Year: 2024

Access Year: 2024

Description: Review protocol

Online publication date: 12/03/2024

Acceptance date: 12/03/2024


DOI: 10.17605/OSF.IO/VXJY6

ePrints DOI: 10.57711/5a52-4577