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Lookup NU author(s): Dr Gurdeep SagooORCiD
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).
© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. Introduction: Improved parental experience is related to improved mental and physical health outcomes for the infant. The COVID-19 pandemic abruptly impacted on healthcare delivery and services need information to shape how to manage the disruption and recovery. Methods Our aim was to develop a systematic process to capture parents' experience of their neonatal surgical healthcare journey during the pandemic. We identified relevant stakeholders and using semistructured interviews, we explored three key themes. (1) How to recruit and collect data from representative parents? (2) What questions should be asked? (3) How to disseminate results for service development? Results: Responses indicated the need to involve € difficult to access groups' (eg, first language not English, high social deprivation, low health literacy), defined the range of family and patient characteristics variables to be considered for representative responses (eg, antenatal diagnosis, disease complexity, number of siblings, single parent, parental health). The proposed questions were grouped into five main topics: information preadmission; in-patient experience; support during admission; the effect of COVID-19; discharge and posthospital experience. Recommendations for dissemination included local, regional and national fora as well as the need to feedback to participants about the changes made. Based on the analysis, we developed a semistructured interview which underwent cognitive testing, prepilot and pilot phase testing. Discussion This protocol is grounded in the views of relevant stakeholders to ensure it captures relevant information in a pragmatic but methodologically sound way. It will next be used to assess parental experience in a large neonatal surgical unit. We hope that the protocol could be adapted and used by other groups.
Author(s): Mernenko RK, Littlejohns A, Latchford G, Crouzen E, Moni-Nwinia W, Lakshminarayanan B, Chauhan H, Lawson E, McConachie D, McElwaine JG, Metcalfe F, Sagoo GS, McKechnie L, Sutcliffe J
Publication type: Article
Publication status: Published
Journal: BMJ Paediatrics Open
Year: 2022
Volume: 6
Issue: 1
Online publication date: 14/07/2022
Acceptance date: 19/05/2022
Date deposited: 18/06/2024
ISSN (electronic): 2399-9772
Publisher: BMJ Publishing Group
URL: https://doi.org/10.1136/bmjpo-2022-001434
DOI: 10.1136/bmjpo-2022-001434
Data Access Statement: Data are available upon reasonable request.
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