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Lookup NU author(s): Chris LovegroveORCiD
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).
Background:Anxiety, a common symptom of Parkinson’s disease (PD), results in reduced life quality, reduced participation in meaningful roles and daily activities, and increased health burden. There are no evidence-based interventions to reduce the impact of anxiety in PD on participation.Objective:This study aimed to identify the key components required for the co-production of an occupation- and community-based intervention for people with PD-related anxiety.Methods:A participatory mixed-methods research study was conducted using online Group Concept Mapping methodology that included five stages: brainstorming, idea synthesis, sorting activity, rating activity, and analysis. A cluster map, pattern match, and ‘go-zone’ charts were created through multivariate statistical analysis based on participants’ responses. The stages were guided by questions generated by the research team working with stakeholders.Results:Eighty-three people participated, with 64 taking part in more than one activity. Participants included people with PD (n = 72), care partners (n = 6), and occupational therapists (n = 5). The final map contained 119 statements with eight clusters (stress value 0.252): exercise, lifestyle changes, self-help, coping, access to information, professional help, peers and groups, support from others. Significant agreement existed between the importance and feasibility rating activities (r = –0.07). ‘Go-zone’ charts highlighted the priority statements for intervention development.Conclusions:This novel participatory study highlighted priority components that provide starting points for future development of an occupation- and community-based intervention for people with PD-related anxiety.
Author(s): Lovegrove CJ, Sturkenboom IHWM, Marsden J, Bannigan K
Publication type: Article
Publication status: Published
Journal: Journal of Parkinson's Disease
Year: 2024
Volume: 14
Issue: 1
Pages: 181-195
Print publication date: 23/01/2024
Online publication date: 23/01/2024
Acceptance date: 19/11/2023
Date deposited: 29/07/2024
ISSN (electronic): 1877-7171
Publisher: IOS Press
URL: https://doi.org/10.3233/JPD-230150
DOI: 10.3233/JPD-230150
PubMed id: 38160365
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