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Informing research design through patient and public involvement; patients and carers with lived experience post-hospital discharge and potential roles for general practice pharmacists

Lookup NU author(s): Faiza Yahya, Professor Hamde NazarORCiD

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This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


Abstract

© 2025. The Author(s). BACKGROUND: Medication safety across care transitions remains a significant burden on healthcare systems. Patient and Public Involvement (PPI) is useful at the very early stages of intervention development to inform research priorities. The aim of this PPI was to scope patients' and carers' lived experiences of medicines management post-hospital discharge to inform the design of a research proposal. METHODS: A research planning PPI workshop and additional one-to-one discussions were undertaken with patients and informal carers who had experienced a recent discharge from hospital and were prescribed regular repeat medications. RESULTS: The 12 public contributors identified that the priority for patients was not limited to medication management alone but rather a broader care package. Multiple themes as priorities for research emerged: (1) broader holistic and social aspects of care involving various healthcare professionals, (2) practical aspects such as timeliness of follow-up and co-ordination of medication management, and (3) communication with the patient/carer and information transfer between settings. CONCLUSION: Valuable insights from this PPI helped inform future research design priorities and identify the need for a more holistic approach to care. Future work with multi-stakeholder engagement involving different professionals across sectors is needed to explore safer integrated transitions of care, as well as the use of ongoing PPI and co-design, considering populations that are most vulnerable.


Publication metadata

Author(s): Yahya F, Bartlett S, Paudyal V, Hadi MA, Nazar H, Maidment I

Publication type: Article

Publication status: Published

Journal: BMC Research Notes

Year: 2025

Volume: 18

Issue: 1

Online publication date: 17/04/2025

Acceptance date: 07/04/2025

Date deposited: 12/05/2025

ISSN (electronic): 1756-0500

Publisher: BioMed Central Ltd

URL: https://doi.org/10.1186/s13104-025-07248-6

DOI: 10.1186/s13104-025-07248-6

Data Access Statement: The datasets generated and/or analysed during the current study are not publicly available due in line with the principles of patient and public involvement not requiring ethical approval or written consent from the public contributors for data to be shared publicly. If required, specific data however may be available from the corresponding author on reasonable request and with permission of the public contributors involved.

PubMed id: 40247415


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Funding

Funder referenceFunder name
National Institute of Health and Care Research (NIHR) West Midlands Research Design Service (RDS)
West Midlands Health Education England (HEE)

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