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The role of community advisory boards in enhancing recruitment and retention in Alzheimer's disease and related dementia research in Africa: Experience from the READD-ADSP study

Lookup NU author(s): Dr Stella Paddick, Professor Raj KalariaORCiD

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Abstract

© 2025 The Author(s). Alzheimer's & Dementia published by Wiley Periodicals LLC on behalf of Alzheimer's Association.INTRODUCTION: The Recruitment and Retention of Alzheimer's Disease Diversity Genetic Cohorts in the Alzheimer's Disease Sequencing Project (READD–ADSP) was established to bridge the gap in Alzheimer's disease and related dementias (ADRD) research in Africa. We examined the role of Community Advisory Boards (CABs) in improving participant recruitment and retention in ADRD research in Africa, by exploring how culturally sensitive engagement, community trust-building, and stakeholder involvement influence research participation. METHODS: A multi-site, multi-phased qualitative study approach that involved establishment of CABs, initial planning meetings and community engagement cum recruitment activities. RESULTS: Twenty-one CABs (141 members) were established across 14 study sites in 9 African Dementia Consortium (AfDC) member countries. Co-creation planning meetings, culturally sensitive outreaches for brain health, dementia awareness creation, and recruitment were held. DISCUSSION: Establishing CABs within the READD–ADSP project has proven instrumental in co-creating culturally appropriate and community-centered strategies for recruitment and retention in ADRD research in Africa. Highlights: The Recruitment and Retention of Alzheimer's Disease Diversity Genetic Cohorts in the Alzheimer's Disease Sequencing Project (READD-ADSP) project utilizes a community-engaged research (CER) framework to develop a community engagement program and establish Community Advisory Boards (CABs) to enhance participant recruitment and retention. There is a need to standardize CER practices and promote context-sensitive and culturally appropriate CE activities across African Dementia Consortium (AfDC) sites to ensure cultural sensitivity and enhance recruitment and retention. The project seeks to empower CABs to promote national dementia policies by collaborating with policy-makers and advancing equitable dementia scienced and care in Africa.

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Author(s): Farombi T, Arulogun O, Nichols M, Olorunsogbon OF, Ogunronbi M, Oyedola O, Cadmus E, Ojebuyi B, Sanni TA, Mutiso V, Uthman M, Sule AG, Gumikiriza -Onoria JL, Onunka GC, Calys-Tagoe B, Dinku T, Amaechi IA, Ogunyemi AO, Onibon OY, Ukpabi DE, Ezin HO, Gyabaah S, Afolaranmi T, Adeleye O, Coleman N, Mwombeki I, Andrea D, Damasceno A, Bello A, Wahab K, Musyimi C, Ndetei D, Nwani P, Njamnshi WY, Elugbadebo O, Obiako R, Olowoyo P, Zewde YZ, Ayele BA, Okubadejo N, Osaigbovo G, Sarfo F, Akpalu A, Kamada L, Baiyewu O, Noeline N, Ogundele AT, Njamnshi AK, Iwuozo E, Adoukonou T, Boshe J, Paddick S-M, Nwazor EO, Osemwegie N, Ikanga J, Seshadri S, Owolabi M, Richard W, Byrd G, Kalaria RN, Ogunniyi A, Pericak-Vance M, Akinyemi R

Publication type: Article

Publication status: Published

Journal: Alzheimer's and Dementia

Year: 2025

Volume: 21

Issue: 8

Print publication date: 01/08/2025

Online publication date: 30/07/2025

Acceptance date: 19/06/2025

Date deposited: 19/08/2025

ISSN (print): 1552-5260

ISSN (electronic): 1552-5279

Publisher: John Wiley and Sons Inc

URL: . https://doi.org/10.1002/alz.70529

DOI: 10.1002/alz.70529

PubMed id: 40739333

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