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Lookup NU author(s): Elizabeth GreenORCiD, Imogen ForsytheORCiD, Dr Fiona Pearson, Dr Emma DobsonORCiD
This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).
©Amany Sadat, Elizabeth Green, Imogen Forsythe, Stacey Munnelly, Georgette Eaton, Matthew Wynn, Fiona Pearson, Emma Dobson.Background: Netnography is an emergent qualitative methodology adapted from ethnography to explore interactions and cultural dynamics within digital environments. Although it is increasingly used in health care research, its application remains inconsistent, particularly regarding methodological transparency and ethical reporting. Given netnography’s growing use in health care and the limited guidance on its application, a timely review of how it is defined and operationalized in the literature is warranted. Objective: This scoping review aims to identify, examine, and report how netnography has been defined and operationalized in the health care literature. Methods: A scoping review was conducted in accordance with the Joanna Briggs Institute framework and reported following PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) guidelines. Comprehensive searches across 20 databases and gray literature sources identified peer-reviewed and academic studies that used netnography or netnographic methods within health care. Records were independently double-screened against prespecified eligibility criteria informed by the National Institute for Health and Care Excellence topic classifications. Data from the included studies were charted and synthesized narratively to generate the findings. Results: Eighty-two studies were included, spanning diverse health care topics, populations, and digital platforms. Netnography was most frequently applied to explore health communication, chronic illness, patient empowerment, and health care experiences, particularly among stigmatized or hard-to-reach groups. Ethical transparency varied widely: only 33 studies reported obtaining formal ethical approval, and just over half addressed informed consent. Conclusions: Netnography holds significant promise for health care research, offering insights into lived experiences and access to otherwise inaccessible populations. However, inconsistent methodological and ethical reporting raises concerns about rigor and accountability. To strengthen future applications, clearer guidance is needed on ethical standards, methodological justification, and reporting practices, particularly when researching vulnerable groups and sensitive health issues.
Author(s): Sadat A, Green E, Forsythe I, Munnelly S, Eaton G, Wynn M, Pearson F, Dobson E
Publication type: Review
Publication status: Published
Journal: Journal of Medical Internet Research
Year: 2025
Volume: 27
Online publication date: 24/10/2025
Acceptance date: 09/09/2025
ISSN (electronic): 1438-8871
Publisher: JMIR Publications Inc.
URL: https://doi.org/10.2196/78025
DOI: 10.2196/78025
PubMed id: 41135943
