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Post-Visual Diagnosis Distress: The Weight of Threatened Sight

Lookup NU author(s): Dr Rajesh NairORCiD

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This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).


Abstract

© The Author(s) 2026. Receiving a diagnosis of a vision-threatening eye condition is a psychologically salient event for many patients. Across ophthalmology, fear, uncertainty, and emotional distress are commonly observed at the time of diagnosis, often before substantial functional vision loss occurs. Although depression and anxiety are well documented in chronic eye disease, diagnosis-linked distress remains inconsistently recognised and is rarely addressed systematically within routine ophthalmic care. This article introduces post-visual diagnosis distress (PVDD) as a descriptive, nondiagnostic framework to characterise the predictable, loss-related emotional responses that may arise following the diagnosis of a vision-threatening or irreversible eye condition. PVDD is not proposed as a psychiatric disorder, but as a clinically meaningful construct that helps legitimise patient experience, supports empathetic communication, and facilitates timely recognition and appropriate signposting when distress is significant. Drawing on evidence from age-related macular degeneration, glaucoma, and other chronic eye diseases, and informed by multidisciplinary perspectives spanning ophthalmology, psychiatry, counselling, patient advocacy, and public health, the article argues that recognising PVDD may improve patient engagement, quality of life, and psychological outcomes.


Publication metadata

Author(s): Aslam TM, Ziemssen F, Loewenstein A, Nair R, Thurston M, Hawkins A, Daly A

Publication type: Note

Publication status: Published

Journal: Ophthalmology and Therapy

Year: 2026

Pages: Epub ahead of print

Online publication date: 11/03/2026

Acceptance date: 25/02/2026

ISSN (print): 2193-8245

ISSN (electronic): 2193-6528

Publisher: Adis

URL: https://doi.org/10.1007/s40123-026-01362-9

DOI: 10.1007/s40123-026-01362-9

Data Access Statement: Data sharing is not applicable to this article as no datasets were generated or analyzed during the current study.


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