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The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale

Lookup NU author(s): Dr Deborah Buck


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Few suitable instruments exist for use with people, especially children, with both epilepsy and learning disabilities. One such measure is the Epilepsy and Learning Disabilities Quality of Life scale (ELDQOL), which has recently undergone revision following feedback from relevant users. This article reports on the final psychometric testing phase of this scale. ELDQOL consists of 70 items covering seizure severity, seizure-related injuries, antiepileptic drug side effects, behavior, mood, physical, cognitive, and social functioning, parental concern, communication, overall quality of life, and overall health. Revalidation involved a qualitative phase, to ascertain users' opinions on the wording, coverage, and layout of the questionnaire, and a quantitative phase, to examine internal consistency, test-retest reliability, and validity. There is very good evidence of the reliability and validity of the final version of ELDQOL, making it a promising instrument for assessing quality of life in children/young adults with epilepsy and learning disabilities. © 2006 Elsevier Inc. All rights reserved.

Publication metadata

Author(s): Buck D, Smith M, Appleton R, Baker GA, Jacoby A

Publication type: Article

Publication status: Published

Journal: Epilepsy and Behavior

Year: 2007

Volume: 10

Issue: 1

Pages: 38-43

Print publication date: 01/02/2007

ISSN (print): 1525-5050

ISSN (electronic): 1525-5069

Publisher: Academic Press


DOI: 10.1016/j.yebeh.2006.10.010

PubMed id: 17126607


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