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Screening infants for neuroblastoma: the parents perspective in false-positive cases

Lookup NU author(s): Mike Cole, Emeritus Professor Alan Craft

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Abstract

The objective of this study was to ascertain the reactions and experiences of parents whose children were defined as false- positive cases in a research program of screening 6-month-old babies for neuroblastoma. Parents of seven of the eight infants falling into this category participated in the study. Parents of five children described themselves as worried/very worried at the positive result, some contemplating the treatment involved and the possibility that their child could die. Parents waited a maximum of 3 days before the clinical investigations took place. The mother Of one child was dissatisfied with the handling of the investigations, reporting a lack of information and little opportunity to discuss questions; she was subsequently more anxious about her child. Parents of two children reported lasting ''concerns'' that they attributed to neuroblastoma screening.


Publication metadata

Author(s): Bell S, Parker L, Cole M, Craft AW

Publication type: Article

Publication status: Published

Journal: Pediatric Hematology and Oncology

Year: 1994

Volume: 11

Issue: 2

Pages: 157-163

Print publication date: 01/03/1994

ISSN (print): 0888-0018

ISSN (electronic): 1521-0669

URL: http://dx.doi.org/10.3109/08880019409141651

DOI: 10.3109/08880019409141651

PubMed id: 8204440


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