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Lookup NU author(s): Mike Cole,
Emeritus Professor Alan Craft
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The objective of this study was to ascertain the reactions and experiences of parents whose children were defined as false- positive cases in a research program of screening 6-month-old babies for neuroblastoma. Parents of seven of the eight infants falling into this category participated in the study. Parents of five children described themselves as worried/very worried at the positive result, some contemplating the treatment involved and the possibility that their child could die. Parents waited a maximum of 3 days before the clinical investigations took place. The mother Of one child was dissatisfied with the handling of the investigations, reporting a lack of information and little opportunity to discuss questions; she was subsequently more anxious about her child. Parents of two children reported lasting ''concerns'' that they attributed to neuroblastoma screening.
Author(s): Bell S, Parker L, Cole M, Craft AW
Publication type: Article
Publication status: Published
Journal: Pediatric Hematology and Oncology
Print publication date: 01/03/1994
ISSN (print): 0888-0018
ISSN (electronic): 1521-0669
PubMed id: 8204440
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