ePrints

Screening infants for neuroblastoma: the parents perspective in false-positive cases

Lookup NU author(s): Mike Cole, Emeritus Professor Alan Craft

Downloads

Full text for this publication is not currently held within this repository. Alternative links are provided below where available.

Abstract

The objective of this study was to ascertain the reactions and experiences of parents whose children were defined as false- positive cases in a research program of screening 6-month-old babies for neuroblastoma. Parents of seven of the eight infants falling into this category participated in the study. Parents of five children described themselves as worried/very worried at the positive result, some contemplating the treatment involved and the possibility that their child could die. Parents waited a maximum of 3 days before the clinical investigations took place. The mother Of one child was dissatisfied with the handling of the investigations, reporting a lack of information and little opportunity to discuss questions; she was subsequently more anxious about her child. Parents of two children reported lasting ''concerns'' that they attributed to neuroblastoma screening.

Publication metadata

Author(s): Bell S, Parker L, Cole M, Craft AW

Publication type: Article

Publication status: Published

Journal: Pediatric Hematology and Oncology

Year: 1994

Volume: 11

Issue: 2

Pages: 157-163

Print publication date: 01/03/1994

ISSN (print): 0888-0018

ISSN (electronic): 1521-0669

URL: http://dx.doi.org/10.3109/08880019409141651

DOI: 10.3109/08880019409141651

PubMed id: 8204440

Altmetrics

Share