Browse by author
Lookup NU author(s): Professor Jaap Van Laar
Full text for this publication is not currently held within this repository. Alternative links are provided below where available.
The European League Against Rheumatism Scleroderma Trials and Research Group (EUSTAR) has established an online database with clinical data of currently more than 8200 patients with systemic sclerosis (SSc). In addition to clinical research, EUSTAR fosters biomolecular studies to develop novel biomarkers and therapies for SSc. High-quality biospecimens are the basis for successful biomolecular studies. The EUSTAR biobanking group has therefore developed recommendations to standardise the collection, storage and distribution of SSc biospecimens at EUSTAR centres. These recommendations consider the scientific challenges associated with biomolecular research in SSc and the organisational requirements of EUSTAR. They were approved by the EUSTAR executive committee as well as the EUSTAR board. Once they become effective, these recommendations will be the basis for international EUSTAR studies with large numbers of SSc biospecimens. These recommendations might also be followed by other SSc consortia to enable exchange of biosamples between different SSc initiatives and might serve as a template for biobanking initiatives in other rheumatic diseases.
Author(s): Beyer C, Distler JHW, Allanore Y, Aringer M, Avouac J, Czirjak L, Cutolo M, Damjanov N, Del Galdo F, Fligelstone K, Guiducci S, Kowal-Bielecka O, van Laar JM, Martucci-Cerinic M, Muller-Ladner U, Riemekasten G, Tarner IH, Tyndall A, Kennedy AT, Valentini G, Vettori S, Walker UA, Denton C, Distler O, EUSTAR Biobanking Grp
Publication type: Article
Publication status: Published
Journal: Annals of the Rheumatic Diseases
Year: 2011
Volume: 70
Issue: 7
Pages: 1178-1182
Print publication date: 01/02/2011
ISSN (print): 0003-4967
ISSN (electronic):
Publisher: BMJ Group
URL: http://dx.doi.org/10.1136/ard.2010.142489
DOI: 10.1136/ard.2010.142489
Altmetrics provided by Altmetric
