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Lookup NU author(s): Jenni Hislop,
Dr Helen Mason,
Professor Jeremy Parr,
Professor Luke ValeORCiD,
Emeritus Professor Allan ColverORCiD
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND).
PurposeThis study sought to identify and describe the views of young people with chronic conditions about the transition from paediatric to adult services. MethodsQ-methodology was used to identify young people’s views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from “strongly disagree” to “strongly agree”. Factor analysis was used to identify shared points of view (patterns of similarity between individual’s Q sorts). ResultsFour distinct views on transition were identified from young people: 1) ‘A laid-back view of transition’, 2) ‘Anxiety about transition’, 3) ‘Wanting independence and autonomy during transition’, 4) ‘Valuing social interaction with family, peers and professionals to assist transition’. ConclusionsSuccessful transition is likely to be influenced by how young people view the process. Discussing and understanding young people’s views and preferences about transition should help clinicians and young people develop personalised planning for transition as a whole, and more specifically the point of transfer, leading to effective and efficient engagement with adult care.
Author(s): Hislop J, Mason H, Parr JR, Vale L, Colver A
Publication type: Article
Publication status: Published
Journal: Journal of Adolescent Health
Print publication date: 01/09/2016
Online publication date: 08/06/2016
Acceptance date: 18/04/2016
Date deposited: 20/05/2016
ISSN (print): 1054-139X
ISSN (electronic): 1879-1972
Publisher: Elsevier Inc.
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