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Lookup NU author(s): Professor Tony Young
This is the final published version of a conference proceedings (inc. abstract) published in its final definitive form in 2019. For re-use rights please refer to the publishers terms and conditions.
DemTalk - the web-based tool to improve dementia communication and its adaptation for culturally and linguistically diverse populationsAt health policy level in the global west, person-centred communication (PCC) is strongly advocated for the care of people living with dementia (PLWD). It is, however, under-theorised, and the extent to which it is applicable to care in different cultural contexts underexplored. The aim of this plenary presentation is to address these deficiencies: firstly to report on the development of DemTalk- a free, web-based PCC toolkit, and secondly, to discuss the adaptation of this tool for culturally and linguistically diverse (CLD) populations in Malaysia. In conceptualising the PCC model, a series of iterative investigations were first carried out via observations of communicative practices and individual and focus group discussions on the communicative experiences of PLWDs and families in the UK. A range of health and social care professionals also provided input, with PLWD having the final word in the construction of the model presented as DemTalk. This model was specifically designed to be adaptable over time, and to different cultural populations. The second strand of investigation began with the identification of communication needs and practices that included participation of PLWDs in a CLD community in Malaysia.Ethnographic exploration of interactions and discussions with the various stakeholders revealed that effective communication is crucial in maintaining social participation of the PLWDs and their quality of life. This led to the convergence of the two stands and set the agenda for the lingua-cultural adaptation of DemTalk. The nine core components of good communication practice in DemTalk were unanimously confirmed to be relevant in the chosen CLD community. Specific considerations were then given to the linguistic expressions used and cultural appropriacy of the communication advice presented in the toolkit. The adapted Malaysian English version was then translated into the three other widely used local languages i.e. Malay, Mandarin and Tamil. The most significant implication of this study lies in its potential to guide further adaptations of the toolkit to meet the needs of other populations. This will be detailed and discussed.
Author(s): Young TJ, Koran L
Publication type: Conference Proceedings (inc. Abstract)
Publication status: Published
Conference Name: International Research Meeting on Institutional and Health Talk for Social Applications
Year of Conference: 2019
Print publication date: 10/08/2019
Online publication date: 10/08/2019
Acceptance date: 28/06/2019
Date deposited: 21/08/2019