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Barriers, facilitators and interventions concerning organ donation in people from minority ethnic backgrounds: updating the evidence base

Lookup NU author(s): Dr Christopher Marshall, Madeleine StillORCiD, Akvile StoniuteORCiD, Professor Dawn CraigORCiD, Professor Falko Sniehotta, Professor Catherine Exley, Professor Andrew FisherORCiD, Fiona Beyer


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Introduction: The NIHR previously funded a programme of work (DonaTE) seeking ways to increase the acceptability and rates of organ donation among people from black, Asian and ethnic or mixed (BAME) backgrounds. This work involved a systematic review of the barriers to organ donation, and a review aiming to identify characteristics of effective interventions. Both reviews were published in 2013. We updated and expanded these reviews to provide an up-to-date evidence base on the barriers, facilitators and interventions concerning organ donation in BAME people.Methods: The update review eligibility criteria were based on those used in the original reviews, and expanded to capture facilitators as well as barriers. Any study of any design conducted in a community (i.e. non-hospital/clinical) setting was eligible for inclusion. As per the original reviews, the update search was limited to English language UK and US studies published from 2010 onwards. The searches were conducted in February 2019.Results: The update searches identified 4162 records. Following deduplication, 3066 records were screened by two reviewers. Detail on six barriers and four facilitators were extracted from 16 included studies. Barriers included ‘knowledge of organ donation and registration’, ‘bodily concerns’, ‘donating to friends and family only’, ‘talking with family about donation’, ‘issues of trust within the health system’ and ‘faith and cultural beliefs’. Facilitators identified included ‘altruism’, ‘knowing and meeting other donors and recipients’, ‘knowledge exchange and awareness’ and ‘faith and cultural beliefs’. Five additional included studies (four from the UK and one from the US) reported details of an intervention.Discussion: The evidence base on barriers, facilitators and interventions concerning organ donation in people from BAME backgrounds has been updated. Six barriers and four facilitators were captured. Further, the results showed that the majority of currently available (and evaluated) interventions were education and/or media-based, and that their effectiveness was often reported as limited.

Publication metadata

Author(s): Marshall C, Still M, Hassenfuss J, Stoniute A, Crooks J, Craig D, Sniehotta F, Exley C, Fisher A, Beyer F

Publication type: Conference Proceedings (inc. Abstract)

Publication status: Published

Conference Name: British Transplant Society Congress 2020 “Collaboration in Transplantation”

Year of Conference: 2020

Print publication date: 04/03/2020

Online publication date: 04/03/2020

Acceptance date: 16/12/2019