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How to improve healthcare for autistic people: A qualitative study of the views of autistic people and clinicians

Lookup NU author(s): David Mason, Dr Barry Ingham, Heather Birtles, Dr Marc Woodbury-Smith, Colin Wilson, Professor Jeremy Parr

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This is the authors' accepted manuscript of an article that has been published in its final definitive form by Sage Publications Ltd, 2021.

For re-use rights please refer to the publisher's terms and conditions.


Abstract

LAY ABSTRACT: Research has shown that on average, autistic people are more likely to die earlier than non-autistic people, and barriers can stop autistic people accessing healthcare. We carried out a study where we interviewed healthcare professionals (including doctors and nurses), and held discussion groups of autistic people. Our results highlighted several key points: seeing the same professional is important for autistic people and clinicians; both clinicians and autistic people think making adjustments to healthcare is important (and often possible); autistic people process information in a different way and so may need extra support in appointments; and that clinicians are often constrained by time pressures or targets.


Publication metadata

Author(s): Mason D, Ingham B, Birtles H, Michael C, Scarlett C, James IA, Brown T, Woodbury-Smith M, Wilson C, Finch T, Parr JR

Publication type: Article

Publication status: Published

Journal: Autism: the international journal of research and practice

Year: 2021

Volume: 25

Issue: 3

Pages: 774-785

Online publication date: 28/04/2021

Acceptance date: 02/04/2018

Date deposited: 24/06/2021

ISSN (print): 1362-3613

ISSN (electronic): 1461-7005

Publisher: Sage Publications Ltd

URL: https://doi.org/10.1177/1362361321993709

DOI: 10.1177/1362361321993709

PubMed id: 33910390


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