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How to improve healthcare for autistic people: A qualitative study of the views of autistic people and clinicians

Lookup NU author(s): David Mason, Dr Barry InghamORCiD, Heather Birtles, Dr Marc Woodbury-Smith, Professor Colin Wilson, Professor Jeremy Parr



This is the authors' accepted manuscript of an article that has been published in its final definitive form by Sage Publications Ltd, 2021.

For re-use rights please refer to the publisher's terms and conditions.


LAY ABSTRACT: Research has shown that on average, autistic people are more likely to die earlier than non-autistic people, and barriers can stop autistic people accessing healthcare. We carried out a study where we interviewed healthcare professionals (including doctors and nurses), and held discussion groups of autistic people. Our results highlighted several key points: seeing the same professional is important for autistic people and clinicians; both clinicians and autistic people think making adjustments to healthcare is important (and often possible); autistic people process information in a different way and so may need extra support in appointments; and that clinicians are often constrained by time pressures or targets.

Publication metadata

Author(s): Mason D, Ingham B, Birtles H, Michael C, Scarlett C, James IA, Brown T, Woodbury-Smith M, Wilson C, Finch T, Parr JR

Publication type: Article

Publication status: Published

Journal: Autism: the international journal of research and practice

Year: 2021

Volume: 25

Issue: 3

Pages: 774-785

Online publication date: 28/04/2021

Acceptance date: 02/04/2018

Date deposited: 24/06/2021

ISSN (print): 1362-3613

ISSN (electronic): 1461-7005

Publisher: Sage Publications Ltd


DOI: 10.1177/1362361321993709

PubMed id: 33910390


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