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Lookup NU author(s): Mark Richardson, Karen Wong, Dr Maha Elseed, Dionne Moat, Dr Lizzie Harris, Jassi Michell-Sodhi, Carla Bolaño DiazORCiD, Emma Robinson, Dr Marianela SchiavaORCiD, Emma Grover, Dr Doaa SalmanORCiD, Professor Michela GuglieriORCiD, Professor Giorgio TascaORCiD, Dr Liz Ghimenton, Professor Jordi Diaz ManeraORCiD, Dr Anna Mayhew, Meredith JamesORCiD, Professor Volker StraubORCiD, Professor Chiara Marini Bettolo, Robert Muni Lofra
This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).
© 2025 The Author(s)There is growing evidence on safety and efficacy of exercise in neuromuscular diseases. We sought to establish the levels of exercise exposure for people living with NMD and its association with mobility levels and pain. A standardized questionnaire was used during clinical follow up consultations to categorise exposure to aerobic, strengthening and stretching exercise for 830 patients with 41 different NMD. The level of exercise exposure of people living with NMD in each type of exercise has been found to be limited and the proportion of patient being complying with WHO physical activity guidelines (8 %) was lower than previously reported. Stretching exercise was the most performed type of exercise (37 %), while resistance exercise was the least performed type of exercise (25 %) with aerobic exercise being performed by 33 %. Associations were found between exercise type and diagnosis, mobility status and pain all using chi square testing with significance level of less than 1 %. Patients with greater levels of mobility were more likely to participate in aerobic and resistance exercise and less likely to participate in stretching exercise. The presence of pain was associated with lack of participation in aerobic and resistance exercise but not stretching exercise. Levels of mobility and presence of pain have been identified as significant factors. It is critical to improve supported access and specific exercise guidelines for people living with NMD.
Author(s): Richardson M, Kinet V, Wong K, Elseed M, Moat D, Harris E, Michel-Sodhi J, Bolano-Diaz C, McCallum M, Robinson E, Schiava M, Grover E, Salman D, Guglieri M, Tasca G, Ghimenton E, Diaz-Manera J, Mayhew A, James MK, Straub V, Marini-Bettolo C, Muni-Lofra R
Publication type: Article
Publication status: Published
Journal: Neuromuscular Disorders
Year: 2025
Volume: 52
Print publication date: 01/07/2025
Online publication date: 16/06/2025
Acceptance date: 16/06/2025
Date deposited: 10/07/2025
ISSN (print): 0960-8966
ISSN (electronic): 1873-2364
Publisher: Elsevier Ltd
URL: https://doi.org/10.1016/j.nmd.2025.105421
DOI: 10.1016/j.nmd.2025.105421
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