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Browsing publications by Dr Anna Mayhew.

Newcastle AuthorsTitleYearFull text
Dr Anna Mayhew
Dionne Moat
Robert Muni Lofra
Jassi Sodhi
Adult North Star Network (ANSN): Consensus Document for Therapists Working with Adults with Duchenne Muscular Dystrophy (DMD) - Therapy Guidelines2022
Dr Anna Mayhew
Meredith James
Dr ursula Moore
Helen Sutherland
Robert Muni Lofra
et al.
Assessing the Relationship of Patient Reported Outcome Measures With Functional Status in Dysferlinopathy: A Rasch Analysis Approach2022
Dr ursula Moore
Roberto Fernandez-Torron
Meredith James
Dr Anna Mayhew
Dr Lizzie Harris
et al.
Cardiac and pulmonary findings in dysferlinopathy: A 3-year, longitudinal study2022
Meredith James
Dr Anna Mayhew
Emerita Professor Katherine Bushby
Professor Volker Straub
Comparison of strength testing modalities in dysferlinopathy2022
Dr Anna Mayhew
Dionne Moat
Dr Michelle Eagle
Meredith James
Robert Muni Lofra
et al.
Functional outcome measures in young, steroid-naïve boys with Duchenne muscular dystrophy2022
Dr Fiona Smith
Dr Ian Wilson
Roberto Fernandez-Torron
Meredith James
Dr Ursula Moore
et al.
Three-year quantitative magnetic resonance imaging and phosphorus magnetic resonance spectroscopy study in lower limb muscle in dysferlinopathy2022
Robert Muni Lofra
Ruth Wake
Dr Anna Mayhew
Dr Chiara Marini Bettolo
Longitudinal changes in respiratory and upper limb function in a pediatric type III spinal muscular atrophy cohort after loss of ambulation2021
Dr Ursula Moore
Meredith James
Dr Anna Mayhew
Dr Michela Guglieri
Roberto Fernandez-Torron
et al.
Miyoshi myopathy and limb girdle muscular dystrophy R2 are the same disease2021
Mark Richardson
Dr Anna Mayhew
Robert Muni Lofra
Dr Lindsay Murphy
Professor Volker Straub
et al.
Prevalence of pain within limb girdle muscular dystrophy r9 and implications for other degenerative diseases2021
Dr Claire Wood
Dr Kieren Hollingsworth
Dr Eric Hughes
Dr Sadha Punniyakodi
Robert Muni Lofra
et al.
Pubertal induction in adolescents with DMD is associated with high satisfaction, gonadotropin release and increased muscle contractile surface area2021
Dr Anna Mayhew
Robert Muni Lofra
Dr Chiara Marini Bettolo
Clinical Variability in Spinal Muscular Atrophy Type III2020
Dr Ursula Moore
Roberto Fernandez-Torron
Meredith James
Dr Anna Mayhew
Professor Andrew Blamire
et al.
Intensive Teenage Activity Is Associated With Greater Muscle Hyperintensity on T1W Magnetic Resonance Imaging in Adults With Dysferlinopathy2020
Dr Anna Mayhew
Roberto Fernandez-Torron
Dr Michelle Eagle
Karen Bettinson
Professor Andrew Blamire
et al.
Assessment of disease progression in dysferlinopathy – a 1 year cohort study2019
Dr Anna Mayhew
Dr Michela Guglieri
Categorising trajectories and individual item changes of the North Star Ambulatory Assessment in patients with Duchenne muscular dystrophy2019
Dr Alex Murphy
Meredith James
Dr Anna Mayhew
Dr Michelle Eagle
Dr Kieren Hollingsworth
et al.
Natural history of limb girdle musclar dystrophy R9 over 6 years: searching for trial endpoints2019
Dr Claire Wood
Dr Timothy Cheetham
Dr Kieren Hollingsworth
Dr Michela Guglieri
Dr Anna Mayhew
et al.
Observational study of clinical outcomes for testosterone treatment of pubertal delay in Duchenne muscular dystrophy2019
Dr Anna Mayhew
Meredith James
Professor Volker Straub
Performance of Upper Limb module for Duchenne muscular dystrophy2019
Dr Anna Mayhew
Robert Muni Lofra
Professor Volker Straub
Revised upper limb module for spinal muscular atrophy: 12 month changes2019
Professor Jordi Diaz Manera
Roberto Fernandez-Torron
Meredith James
Dr Anna Mayhew
Dr Fiona Smith
et al.
Muscle MRI in dysferlinopathy patients: Pattern recognition and implications for clinical trials2018
Dr Anna Mayhew
Robert Muni Lofra
Quantitative Evaluation of Lower Extremity Joint Contractures in Spinal Muscular Atrophy: Implications for Motor Function2018
Dr Ursula Moore
Roberto Fernandez-Torron
Meredith James
Dr Anna Mayhew
Dr Michelle Eagle
et al.
Teenage exercise is associated with earlier symptom onset in dysferlinopathy: a retrospective cohort study2018
Dr Anna Mayhew
Development of a patient-reported outcome measure for upper limb function in Duchenne muscular dystrophy: DMD Upper Limb PROM2017
Libby Wood
Dr Chiara Marini Bettolo
Dr Michela Guglieri
Dr Grace McMacken
Dr Anna Mayhew
et al.
Respiratory involvement in ambulant and non-ambulant patients with facioscapulohumeral muscular dystrophy2017
Dr Ursula Moore
Meredith James
Dr Anna Mayhew
Dr Fiona Smith
Dr Lizzie Harris
et al.
Clinical outcome study for dysferlinopathy: One-year follow-up2016
Dr Anna Mayhew
Dr Michelle Eagle
Dr Michela Guglieri
Professor Volker Straub
Professor Hanns Lochmuller
et al.
Corrigendum to Development and psychometric analysis of the Duchenne muscular dystrophy Functional Ability Self-Assessment Tool (DMDSAT) (vol 25, pg 937, 2015)2016
Dr Michelle Eagle
Dr Anna Mayhew
Dr Michela Guglieri
Professor Volker Straub
Outcome measures for Duchenne muscular dystrophy from ambulant to non-ambulant: Implications for clinical trials2016
David Rawlings
Dr Claire Wood
Dr Timothy Cheetham
Dr Cecilia Jimenez Moreno
Dr Anna Mayhew
et al.
Prophylactic oral bisphosphonate therapy in duchenne muscular dystrophy2016
Dr Anna Mayhew
Emerita Professor Katherine Bushby
Revised Hammersmith scale for spinal muscular atrophy: Longitudinal changes over six and twelve months in a large international cohort2016
Dr Lizzie Harris
Dr Catherine Bladen
Dr Anna Mayhew
Meredith James
Karen Bettinson
et al.
The Clinical Outcome Study for dysferlinopathy: An international multicenter study2016
Dr Anna Mayhew
Dr Michelle Eagle
Dr Michela Guglieri
Professor Volker Straub
Professor Hanns Lochmuller
et al.
Development and Psychometric Analysis of the Duchenne Muscular Dystrophy Functional Ability Self-Assessment Tool (DMDSAT)2015
Dr Cecilia Jimenez Moreno
Dr Sira Moreno
Dr Michelle Eagle
Dr Anna Mayhew
Meredith James
et al.
Impact of three decades of improvement in standards of care for Duchenne muscular dystrophy2015
Dr Stephen Lynn
Professor Annemieke Aartsma-Rus
Emerita Professor Katherine Bushby
Dr Anna Mayhew
Professor Volker Straub
et al.
Measuring clinical effectiveness of medicinal products for the treatment of Duchenne muscular dystrophy2015
Dr Anna Mayhew
Meredith James
Dr Michelle Eagle
Dr Catherine Bladen
Karen Bettinson
et al.
Preparation of a disease specific functional measure suitable for trials in dysferlinopathy2015
Dr Lizzie Harris
Karen Bettinson
Meredith James
Dr Anna Mayhew
Dr Michelle Eagle
et al.
International Clinical Outcome Study in Dysferlinopathy (COS): Results of screening questionnaires in UK patients2014
Dr Tracey Willis
Dr Kieren Hollingsworth
Dr Michelle Eagle
Dr Anna Mayhew
Emerita Professor Katherine Bushby
et al.
Quantitative Magnetic Resonance Imaging in Limb-Girdle Muscular Dystrophy 2I: A Multinational Cross-Sectional Study2014
Dr Michelle Eagle
Dr Anna Mayhew
Karen Bettinson
Meredith James
Dr Brigitta von Rekowski
et al.
Clinical outcome measures for dysferlinopathy: An exploration of reliability and suitability of novel functional rating scales2013
Dr Anna Mayhew
Dr Michelle Eagle
Emerita Professor Katherine Bushby
Detecting meaningful change using the North Star Ambulatory Assessment in Duchenne muscular dystrophy2013
Dr Anna Mayhew
Dr Michelle Eagle
Meredith James
Emerita Professor Katherine Bushby
Performance of Upper Limb Scale for use in Duchenne muscular dystrophy - An iterative process to establish its suitability for clinical trials2013
Dr Tracey Willis
Dr Kieren Hollingsworth
Dr Michelle Eagle
Dr Anna Mayhew
Emerita Professor Katherine Bushby
et al.
Quantitative Muscle MRI as an Assessment Tool for Monitoring Disease Progression in LGMD2I: A Multicentre Longitudinal Study2013
Meredith James
Dr Michelle Eagle
Dr Anna Mayhew
Clinical Evaluator training for the GSK DEMAND programme2012
Dr Michelle Eagle
Dr Anna Mayhew
Dr Eugen-Matthias Strehle
Development of a Functional Assessment Scale for Ambulatory Boys with Duchenne Muscular Dystrophy2012
Dr Michelle Eagle
Dr Anna Mayhew
Development of an upper limb functional scale in dystrophinopathies2012
Dr Anna Mayhew
Dr Michelle Eagle
Exploratory Rasch analysis of the EK2 scale used in a population of Duchenne muscular dystrophy (DMD)2012
Dr Anna Mayhew
Dr Michelle Eagle
Emerita Professor Katherine Bushby
Trial readiness: Clinical interpretability of change scores of the North Star Ambulatory Assessment in Duchenne muscular dystropy2012
Dr Tracey Willis
Dr Kieren Hollingsworth
Dr Michelle Eagle
Dr Anna Mayhew
Emerita Professor Katherine Bushby
et al.
Assessing muscle pathology by MRI in LGMD2I2011
Dr Anna Mayhew
Dr Michelle Eagle
Dr Tracey Willis
Professor Volker Straub
Exploratory Rasch analysis of adapted North Star ambulatory assessment in LGMD 2I2011
Dr Anna Mayhew
Dr Michelle Eagle
Emerita Professor Katherine Bushby
Professor Volker Straub
Dr Anna Sarkozy
et al.
Moving towards meaningful measurement: Rasch analysis of the North Star Ambulatory Assessment in Duchenne muscular dystrophy2011
Dr Tracey Willis
Dr Kieren Hollingsworth
Dr Michelle Eagle
Dr Anna Mayhew
Emerita Professor Katherine Bushby
et al.
Quantitative MRI in LGMD2I; a longitudinal study2011
Dr Michelle Eagle
Dr Anna Mayhew
Dr Tracey Willis
Professor Hanns Lochmuller
Emerita Professor Katherine Bushby
et al.
Functional outcome measures in limb girdle muscular dystrophy 21: Correlations with MRI2010