Lookup NU author(s): Jennifer McAnuff,
Dr Niina Kolehmainen
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).
There is an urgent, agreed need to improve participation outcomes and interventions for children and young people with neurodisability. We worked together with service users and providers to design research into participation outcomes and interventions in neurodisability. We built on existing evidence about participation outcomes and interventions and the WHO International Classification of Functioning, Disability and Health. We: (1) specified seven participation outcome categories for measurement; (2) prioritized these for improvement: self-care, friends and social, and physical activity ranked the highest; (3) identified 11 potential intervention categories for targeting the top priority, self-care, through eight hypothesized change mechanisms and agreed for the interventions to be delivered as a 'Menu of Interventions' for personalized self-care support; and (4) designed a before-and-after mixed methods feasibility study to evaluate the Menu with children and young people (0-12 years) and their parents and therapists.
Author(s): McAnuff J, Brooks R, Duff C, Quinn M, Marshall J, Kolehmainen N
Publication type: Article
Publication status: Published
Journal: Child: Care, Health and Development
Print publication date: 01/03/2017
Online publication date: 21/10/2016
Acceptance date: 04/09/2016
Date deposited: 24/10/2016
ISSN (print): 0305-1862
ISSN (electronic): 1365-2214
Publisher: Wiley-Blackwell Publishing Ltd
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