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Parents’ Opinions about an Intervention to Manage Repetitive Behaviours in Young Children with Autism Spectrum Disorder: A Qualitative Study

Lookup NU author(s): Anna Hodgson, Dr Victoria Grahame, Deborah Garland, Jan Lecouturier, Professor Ann Le Couteur

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Abstract

BackgroundEarly intervention for autism spectrum disorder (ASD) tends to focus on enhancing social communication skills. We report data collected via focus group discussions as part of a feasibility and acceptability pilot randomized controlled trial (RCT) about a new parent group intervention to manage restricted and repetitive behaviours (RRB) in young children with ASD.MethodsThe focus groups were led by two independent facilitators and followed a semi-structured topic guide with the aim of considering three key topics: experiences of participating in a RCT, opinions about the intervention and the impact of the intervention on the participants, their children and the family.ResultsFourteen participants attended the focus groups. Most participants reported that they had little knowledge of RRB before attending the intervention and that it had had a positive impact on them, their children and their family.ConclusionThe findings support the view that there is an unmet need for a parent-mediated intervention focusing on RRB.

Publication metadata

Author(s): Hodgson A, Grahame V, Garland D, Gaultier F, Lecouturier J, Le Couteur A

Publication type: Article

Publication status: Published

Journal: Journal of Applied Research in Intellectual Disabilities

Year: 2018

Volume: 31

Issue: S2

Pages: 165-178

Print publication date: 01/03/2018

Online publication date: 19/12/2016

Acceptance date: 23/10/2016

ISSN (print): 1360-2322

ISSN (electronic): 1468-3148

Publisher: Wiley

URL: https://doi.org/10.1111/jar.12317

DOI: 10.1111/jar.12317

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