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Enabling participation of people with Parkinson's and their caregivers in Co-inquiry around collectivist health technologies

Lookup NU author(s): Dr Rosin McNaney, Professor John Vines, Andrew Dow, Emeritus Professor Pete Wright


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© 2018 Copyright is held by the owner/author(s). While user participation is central to HCI, co-inquiry takes this further by having participants direct and control research from conceptualisation to completion. We describe a co-inquiry, conducted over 16 months with a Parkinson's support group. We explored how the participation of members might be enabled across multiple stages of a research project, from the generation of research questions to the development of a prototype. Participants directed the research into developing alternative modes of information provision, resulting in'Parkinson's Radio' - a collectivist health information service produced and edited by members of the support group. We reflect on how we supported participation at different stages of the project and the successes and challenges faced by the team. We contribute insights into the design of collectivist health technologies for this group, and discuss opportunities and tensions for conducting co-inquiry in HCI research.

Publication metadata

Author(s): McNaney R, Vines J, Dow A, Robinson H, Robinson H, McDonald K, Brown L, Santer P, Murray D, Murray J, Green D, Wright P

Publication type: Conference Proceedings (inc. Abstract)

Publication status: Published

Conference Name: Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18)

Year of Conference: 2018

Pages: 491

Online publication date: 21/04/2018

Acceptance date: 02/04/2018

Publisher: ACM


DOI: 10.1145/3173574.3174065

Library holdings: Search Newcastle University Library for this item

ISBN: 9781450356206