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Developing a trauma checklist for people with a learning disability accessing community health and support services

Lookup NU author(s): Dr Sarah WighamORCiD, Arman Iranpour, Dr Iain McKinnonORCiD, Dr Simon Hackett

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This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


Abstract

Background. Research suggests people with a learning disability experience high prevalence of adverse life events which may result in trauma-related mental health conditions. Identifying trauma-related mental health conditions can facilitate access to support, however research suggests they may be under-identified in this group. The aim of this study was to develop trauma checklists appropriate for people with a learning disability accessing community health and support services.Methods. The checklist was developed iteratively during consultation and informed by the Lancaster and Northgate Trauma Scales. Data were collected during interviews and focus groups and analysed using thematic analysis.Findings. Twenty-eight participants included seven people with a learning disability, two relatives and nineteen service providers. Two trauma checklists, each with 13 questions were developed including an accessible self-report and an informant or observer version. Content validity, face validity, utility and acceptability were supported. Three themes were identified including: (i) recognising trauma responses and early identification (ii) continuity of care and care pathways and (iii) characteristics of the checklists.Conclusions. The checklists can be used to raise awareness of trauma and support development of trauma care pathways for people with a learning disability accessing community health and support services.


Publication metadata

Author(s): Wigham S, Iranpour A, Taylor JL, Hills-Wilson C, Reitemeier P, Petersen K, McKinnon I, Hackett S

Publication type: Article

Publication status: Published

Journal: British Journal of Learning Disabilities

Year: 2025

Pages: epub ahead of print

Online publication date: 01/11/2025

Acceptance date: 08/10/2025

Date deposited: 18/10/2025

ISSN (print): 1354-4187

ISSN (electronic): 1468-3156

Publisher: Wiley-Blackwell Publishing Ltd.

URL: https://doi.org/10.1111/bld.70018

DOI: 10.1111/bld.70018


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Funding

Funder referenceFunder name
Applied Research Collaboration (ARC) North East and North Cumbria
NIHR

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