Publications by Ben Porter - ePrints

Newcastle Authors	Title	Year
Ben Porter	1st FSHD European Trial Network workshop: working towards trial readiness across Europe	2021
Ben Porter Dr Chiara Marini Bettolo	Characterising myotonic dystrophy (DM) and supporting national and international research projects: nine years of the UK DM patient registry	2021
Joanne Bullivant Ben Porter Dr Lindsay Murphy Dr Chiara Marini Bettolo	Myotubular and centronuclear myopathy patient registry: Accelerating the pace of research and treatment	2021
Ben Porter Joanne Bullivant Lucy Imber Dr Lindsay Murphy	Relevance of maximal performance measurement during real-life ambulation in neuromuscular diseases: patients' and caregiver perspectives	2021
Ben Porter Robert Muni Lofra Dr Chiara Marini Bettolo	The UK FSHD Patient Registry: Linking Patients to National and Internationals Research Projects	2021
Ben Porter	The UK Myotonic Dystrophy Patient Registry: Linking Patients to National and International Research Projects	2021
Ben Porter Phillip Cammish Joseph Orrell Emma Heslop Dr Chiara Marini Bettolo et al.	The UK FSHD Patient Registry: A Key Tool in the Facilitation of Clinical Research	2019
Ben Porter Phillip Cammish Emma Heslop Dr Chiara Marini Bettolo	The UK Myotonic Dystrophy Patient Registry: A Key Tool in the Facilitation of Clinical Research	2019