Ben Porter
| 1st FSHD European Trial Network workshop: working towards trial readiness across Europe | 2021 |
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Ben Porter Robert Muni Lofra Professor Chiara Marini Bettolo
| Characterising FSHD and supporting national and international research projects: eight years of the UK FSHD Patient Registry | 2021 |
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Ben Porter Professor Chiara Marini Bettolo
| Characterising myotonic dystrophy (DM) and supporting national and international research projects: nine years of the UK DM patient registry | 2021 |
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Joanne Bullivant Ben Porter Dr Lindsay Murphy Professor Chiara Marini Bettolo
| Myotubular and centronuclear myopathy patient registry: Accelerating the pace of research and treatment | 2021 |
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Ben Porter Joanne Bullivant Lucy Imber Dr Lindsay Murphy
| Relevance of maximal performance measurement during real-life ambulation in neuromuscular diseases: patients' and caregiver perspectives | 2021 |
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Ben Porter Robert Muni Lofra Professor Chiara Marini Bettolo
| The UK FSHD Patient Registry: Linking Patients to National and Internationals Research Projects | 2021 |
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Ben Porter
| The UK Myotonic Dystrophy Patient Registry: Linking Patients to National and International Research Projects | 2021 |
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Ben Porter Phillip Cammish Joseph Orrell Emma Heslop Professor Chiara Marini Bettolo et al. | The UK FSHD Patient Registry: A Key Tool in the Facilitation of Clinical Research | 2019 |
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Ben Porter Phillip Cammish Emma Heslop Professor Chiara Marini Bettolo
| The UK Myotonic Dystrophy Patient Registry: A Key Tool in the Facilitation of Clinical Research | 2019 |
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