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Enhancing the validity of a Quality of Life measure for autistic people

Lookup NU author(s): Emerita Professor Helen McConachie, David Mason, Professor Jeremy Parr, Deborah Garland, Colin Wilson, Professor Jacqueline Rodgers



This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure—WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people.

Publication metadata

Author(s): McConachie H, Mason D, Parr JR, Garland D, Wilson C, Rodgers J

Publication type: Article

Publication status: Published

Journal: Journal of Autism and Developmental Disorders

Year: 2018

Volume: 48

Issue: 5

Pages: 1596-1611

Print publication date: 01/05/2018

Online publication date: 29/11/2017

Acceptance date: 08/11/2017

Date deposited: 01/12/2017

ISSN (print): 0162-3257

ISSN (electronic): 1573-3432

Publisher: Springer


DOI: 10.1007/s10803-017-3402-z


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