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The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention

Lookup NU author(s): Emerita Professor Helen McConachie, Professor Ann Le Couteur, Rachel Cole-Fletcher, Anna Cutress, Professor Jeremy Parr, Kathryn Temple



This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).


© 2017 The Author(s)There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up.

Publication metadata

Author(s): Leadbitter K, Aldred C, McConachie H, Le Couteur A, Kapadia D, Charman T, Macdonald W, Salomone E, Emsley R, Green J, Barrett B, Barron S, Beggs K, Blazey L, Bourne K, Byford S, Cole-Fletcher R, Collino J, Colmer R, Cutress A, Gammer I, Harrop C, Houghton T, Howlin P, Hudry K, Leach S, Maxwell J, Parr J, Pickles A, Randles S, Slonims V, Taylor C, Temple K, Tobin H, Vamvakas G, White L

Publication type: Article

Publication status: Published

Journal: Journal of Autism and Developmental Disorders

Year: 2018

Volume: 48

Issue: 4

Pages: 1052-1062

Print publication date: 01/04/2018

Online publication date: 18/11/2017

Acceptance date: 02/04/2016

Date deposited: 15/12/2017

ISSN (print): 0162-3257

ISSN (electronic): 1573-3432

Publisher: Springer New York LLC


DOI: 10.1007/s10803-017-3350-7


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