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Browsing publications by
Victoria Hedley.
Newcastle Authors
Title
Year
Full text
Dr Anando Sen
Victoria Hedley
Avril Palmeri
Joanne Lee
Sonia Segovia
et al.
Learning from Conect4children: A Collaborative Approach towards Standardization of Disease-Specific Paediatric Research Data
2024
Becca Leary
Victoria Hedley
Dr Anando Sen
Avril Palmeri
Mapping of Data-Sharing Repositories for Paediatric Clinical Research—A Rapid Review
2024
Victoria Hedley
Becca Leary
Dr Anando Sen
Anna Irvin
Emma Heslop
et al.
Performing clinical drug trials in children with a rare disease
2024
Chima Amadi
Becca Leary
Avril Palmeri
Victoria Hedley
Dr Anando Sen
et al.
How Can a Clinical Data Modelling Tool Be Used to Represent Data Items of Relevance to Paediatric Clinical Trials? Learning from the Conect4children (c4c) Consortium
2022
Dr Anando Sen
Victoria Hedley
Avril Palmeri
Joanne Lee
Becca Leary
et al.
Standardizing paediatric clinical data: The development of the conect4children (c4c) cross cutting paediatric data dictionary
2022
Victoria Hedley
Rare Diseases. In: Amelung V., Stein V., Suter E., Goodwin N., Nolte E., Balicer R. (eds) Handbook Integrated Care
2021
Victoria Hedley
Recommendations from the Rare 2030 Foresight Study: The future of rare diseases starts today
2021
Victoria Hedley
Shaping national plans and strategies for rare diseases in Europe: past, present, and future
2021
Victoria Hedley
Implementation and relevance of FAIR data principles in biopharmaceutical R&D
2019
Professor Hanns Lochmuller
Emerita Professor Katherine Bushby
Rachel Thompson
Victoria Hedley
Improved diagnosis and care for rare diseases through implementation of precision public health framework
2017
Victoria Hedley
Emerita Professor Katherine Bushby
Challenges raised by cross-border testing of rare diseases in the European Union
2016
Dr Teresinha Evangelista
Victoria Hedley
Dr Jose Atalaia
Dr Stephen Lynn
Emerita Professor Katherine Bushby
et al.
The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks
2016