Publications by Victoria Hedley - ePrints

Browsing publications by Victoria Hedley.

Newcastle Authors	Title	Year
Dr Anando Sen Victoria Hedley Avril Palmeri Joanne Lee Sonia Segovia et al.	Learning from Conect4children: A Collaborative Approach towards Standardization of Disease-Specific Paediatric Research Data	2024
Becca Leary Victoria Hedley Dr Anando Sen Avril Palmeri	Mapping of Data-Sharing Repositories for Paediatric Clinical Research—A Rapid Review	2024
Victoria Hedley Becca Leary Dr Anando Sen Anna Irvin Emma Heslop et al.	Performing clinical drug trials in children with a rare disease	2024
Avril Palmeri Dr Anando Sen Joanne Lee Victoria Hedley Jessie Trueman et al.	The European Health Data Space needs to be relevant for paediatric data to support future medicines development for children – a conect4children viewpoint	2024
Chima Amadi Becca Leary Avril Palmeri Victoria Hedley Dr Anando Sen et al.	How Can a Clinical Data Modelling Tool Be Used to Represent Data Items of Relevance to Paediatric Clinical Trials? Learning from the Conect4children (c4c) Consortium	2022
Dr Anando Sen Victoria Hedley Avril Palmeri Joanne Lee Becca Leary et al.	Standardizing paediatric clinical data: The development of the conect4children (c4c) cross cutting paediatric data dictionary	2022
Victoria Hedley	Rare Diseases. In: Amelung V., Stein V., Suter E., Goodwin N., Nolte E., Balicer R. (eds) Handbook Integrated Care	2021
Victoria Hedley	Recommendations from the Rare 2030 Foresight Study: The future of rare diseases starts today	2021
Victoria Hedley	Shaping national plans and strategies for rare diseases in Europe: past, present, and future	2021
Victoria Hedley	Implementation and relevance of FAIR data principles in biopharmaceutical R&D	2019
Professor Hanns Lochmuller Emerita Professor Katherine Bushby Rachel Thompson Victoria Hedley	Improved diagnosis and care for rare diseases through implementation of precision public health framework	2017
Victoria Hedley Emerita Professor Katherine Bushby	Challenges raised by cross-border testing of rare diseases in the European Union	2016
Dr Teresinha Evangelista Victoria Hedley Dr Jose Atalaia Dr Stephen Lynn Emerita Professor Katherine Bushby et al.	The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks	2016