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Browsing publications by Victoria Hedley.

Newcastle AuthorsTitleYearFull text
Chima Amadi
Becca Leary
Avril Palmeri
Victoria Hedley
Dr Anando Sen
et al.
How Can a Clinical Data Modelling Tool Be Used to Represent Data Items of Relevance to Paediatric Clinical Trials? Learning from the Conect4children (c4c) Consortium2022
Dr Anando Sen
Victoria Hedley
Avril Palmeri
Joanne Lee
Becca Leary
et al.
Standardizing paediatric clinical data: The development of the conect4children (c4c) cross cutting paediatric data dictionary2022
Victoria Hedley
Rare Diseases. In: Amelung V., Stein V., Suter E., Goodwin N., Nolte E., Balicer R. (eds) Handbook Integrated Care2021
Victoria Hedley
Recommendations from the Rare 2030 Foresight Study: The future of rare diseases starts today2021
Victoria Hedley
Shaping national plans and strategies for rare diseases in Europe: past, present, and future2021
Victoria Hedley
Implementation and relevance of FAIR data principles in biopharmaceutical R&D2019
Professor Hanns Lochmuller
Emerita Professor Katherine Bushby
Rachel Thompson
Victoria Hedley
Improved diagnosis and care for rare diseases through implementation of precision public health framework2017
Victoria Hedley
Emerita Professor Katherine Bushby
Challenges raised by cross-border testing of rare diseases in the European Union2016
Dr Teresinha Evangelista
Victoria Hedley
Dr Jose Atalaia
Dr Stephen Lynn
Emerita Professor Katherine Bushby
et al.
The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks2016