Avril Palmeri Dr Anando Sen Victoria Hedley Becca Leary Professor Volker Straub et al. | Paediatric-specific content in data standards for health | 2025 |
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Dr Anando Sen Avril Palmeri Becca Leary
| Data Standardization within Pediatrics: BPCRN’s analysis of trials identifying cross-cutting data points | 2024 |
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Dr Anando Sen Victoria Hedley Avril Palmeri Joanne Lee Sonia Segovia et al. | Learning from Conect4children: A Collaborative Approach towards Standardization of Disease-Specific Paediatric Research Data | 2024 |
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Becca Leary Victoria Hedley Dr Anando Sen Avril Palmeri
| Mapping of Data-Sharing Repositories for Paediatric Clinical Research—A Rapid Review | 2024 |
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Victoria Hedley Becca Leary Dr Anando Sen Anna Irvin Emma Heslop et al. | Performing clinical drug trials in children with a rare disease | 2024 |
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Avril Palmeri Dr Anando Sen Joanne Lee Victoria Hedley Jessie Trueman et al. | The European Health Data Space needs to be relevant for paediatric data to support future medicines development for children – a conect4children viewpoint | 2024 |
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Avril Palmeri Becca Leary Dr Anando Sen
| Creating a metadata profile for clinical trial protocols | 2023 |
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Becca Leary Avril Palmeri Dr Anando Sen
| Data Standards User Guide for Pediatrics (Paediatrics User Guide) | 2023 |
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Chima Amadi Becca Leary Avril Palmeri Victoria Hedley Dr Anando Sen et al. | How Can a Clinical Data Modelling Tool Be Used to Represent Data Items of Relevance to Paediatric Clinical Trials? Learning from the Conect4children (c4c) Consortium | 2022 |
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Dr Anando Sen Victoria Hedley Avril Palmeri Joanne Lee Becca Leary et al. | Standardizing paediatric clinical data: The development of the conect4children (c4c) cross cutting paediatric data dictionary | 2022 |
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Dr Anando Sen Avril Palmeri Becca Leary Professor Volker Straub
| Understanding paediatric data standards challenges through academia-industry partnerships: A conect4children (c4c) qualitative study | 2022 |
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Becca Leary Dr Francesca Rocchi
| The conect4children (c4c) Consortium: Potential for Improving European Clinical Research into Medicines for Children | 2021 |
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Dr Ingrid Verhaart Agata Robertson Becca Leary Dr Grace McMacken Professor Hanns Lochmuller et al. | A multi-source approach to determine SMA incidence and research ready population | 2017 |
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Becca Leary Dr Anne Oyewole Emerita Professor Katherine Bushby Professor Annemieke Aartsma-Rus
| Translational Research in Europe for theAssessment and Treatment for NeuromuscularDisorders (TREAT-NMD) | 2017 |
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